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View Full Version : moms with PCOS out there?


kkweight
06-27-2006, 10:15 PM
Im looking to talk with some others who have PCOS. We have been TTC now for going on 3.5 years.
We have used alot of drugs and methods and nothing is working for us. I would just like to talk and kind of come up with a new game plan and try to figure things out.
Please come talk with me!lol

nothing_butt_cloth
06-28-2006, 01:23 AM
i got an "informal" diagnosis of PCOS in september of last year. I have had surgery 2 times 4 years to removes cysts that were staring a torsion, and causign lots of pain. I had NO idea of PCOS before this. But it took 15 months to get pregnant with my last baby. and the OB i was seeing said my cysts are the reason i struggle. I used to never struggle. I would get preggy if hubby looked at me cross eyed, and now i cant unless we try all kinds of stuff. I also have a bicornate uterus that makes it hard to carry a baby to term. so in the off chance i get preggy i am at high risk of M/c, stillbirth, or preemie babies.
I was supposed to go back in april ( 6 months after my last surgery) to get more tests run to see where i was at, but i was preggy at the time... I am thinking i need to go in though. I want to try to be on track to get preggy quick. like before september, since i know i will be a mental case come october when my son was due, if i am not preggy..

quarli
06-28-2006, 01:52 AM
Im a PCOS mommy. I was diagnosed at the end of 04. We used Clomid to concieve last year along with a few other natural things like certain vitamins and such. Unlike many woman with PCOS I tend to not have a problem concieving, my issue is in my LP and egg quality, or atleast it used to be I didnt have a problem concieving. I used to get PG at the drop of a hat, but now since my PCOS has gotton worse Ive been PG once coming up on 3 yrs and that was with the help of the Clomid.

Shay
06-28-2006, 04:59 AM
I have PCOS and have been TTC for 9 yrs. I found out 5 yrs ago. I will chat with you anytime.

Ontariomama
06-28-2006, 05:10 AM
:wave:

ME TOO!!!

Ours was secondary infertility caused by PCOS, according to the specialist.

It took us over 3 years to conceive Nathan after two "oops" pregnancies! lol

Nothing worked for me until I lost about 30lbs. If you ARE overweight, I would suggest following a diabetic diet and exercise for a few months. I went from about 180 to 150 and conceived Nathan in 2 months with no "assistance". :D We had actually just decided we were happy with the kiddos we had and dh had talked about getting the big V - then, uh oh! Here comes baby! ;) Apparently we can't conceive when we TRY! lol

Have you been to www.soulcysters.com ? Great site for PCOS information and support! :)

jls~Kain~Drake
06-28-2006, 07:56 AM
I have PCOS, but am not TTC and didn't find out about it until recently (so after the birth of my 2nd child)....however, my friend ttc'd while dealing with PCOS...she was on metformin, i think she used clomid as well...and she had lost weight to conceive her daughter. The only diet modification that would allow her to lose weight, was something similar to atkins. Seriously restricting carbs. That's definitely something you'd want to discuss with a doc though, I'd think...i mean, extremes in diet modification.

bobandjess99
06-28-2006, 10:12 PM
I have PCOS.
It took us four years (for three of that, the PCOS wasn't diagnosed) to get our li'l angel, and we are gearing up for TTC#2 starting..umm, right now!LOL!

Last time, what helped us was a LOT of vitamins (many times more than a standard prenatal or Women's daily type..like several THOUSAND times the RDA of certain things, etc...)
and the prescription treatment metformin (wonderful drug!!)
and medication for hypothyroid, which is common in conjunction with PCOS.

I highly recommend that anyone with PCOS go to soulcysters.net, it's great for info, and at least try metformin..even if you do NOT have insulin resistance, it has been shown to help!!!!

kkweight
06-29-2006, 12:10 AM
Well the reason i ask is because i have no direction and im worn out a little from the past 3.5 years.
I found out i had PCOS at the ripe old age of 16. I had a lap and thats how they found out. I have very unregualr periods even with BC. And frankly, i cant put another BC pill in my mouth or ill freak out.lol I dont handle them well at all.
I have the insulin resistance that comes with PCOS. I follow a VERY strict diet and have for about a year and a half now. My Naturopath has worked with me alot on this. When i concieved my DD i was on BC and didnt have a period for 2 years. I also lost about 125 pounds in a years time. I believe the drop in weight was what brought on the ovulation. I have been gaining weight no matter what i do, i excersize 4 days a week, have very healthy eating habits and still i keep gaining.
I only eat Ezekial bread but i only eat maybe 1/2 of a slice per week. No refined foods, no sugars, we use Agave instead which is like honey but it doesnt give the pancreas the hit that honey and sugar does which is what im supposed to avoid. We eat only hormone free and antibiotic free meats and poultry. I eat more chicken then red meats. TONs of fish. and for 2 meals out of the day im eating kale/leafy greens salads. I eat fruit as a dessert and drink TONS of water. We dont have junk foods. Where am i going wrong? Any advice is needed!
Also as for the drugs i got horribly sick on Metformin. I want to try it again but the sickness just isnt worth it. I have a business to run and a family to care for, i dont have time to be sick like that.lol the Clomid put me in the hospital, that ones out for now. Provera was OK to bring on my cycle but once a period started it wouldnt stop. I had 7 week sof almost post partum like bleeding. So, again, any advice is appreciated. I just dont know where else to go or what more to do.
I know if i lost weight my chances would improve but i feel like im doing everything possible to loose the weight and its just not coming off.

bobandjess99
06-29-2006, 11:54 PM
kkweight:
i was JUST talking about this with another PCOS mom....for a small number of women with PCOS, coming off of BCP is when they are MOST fertile.....if you are not currently on bcp, you might want to go on for 2-3 months, and then stop...and it's possible you will ovulate right away. For some women, that is how they work.
The way you said you conceived your child while ion BCP the first time makes me think this might wairk for you.....

Also, the fact that you said you are gaining weight for no reason, makes me suspect the met might help you.....
I understand about the side effects, i get them BAD...but this drug really has been shown to work the absolute best out of evertything. There are ways to try and minimize the side effects, and depending on how long it has been for you, things might have changed....do you know there is now an "extended release" version? It has MUCH less side effects, because all the medicine isn't dumping into your system at once, it slowly releases a little bit all day long.
OR, if you increase the dosage REALLY slowly, that works for some women. Also, were you eating this healthy the first time you were on met? fatty/carby foods tend to exascerbate the stomach problems, so if your diet at the time wasn't as good as it is now, that could had added to the troubles.
Even though your diet sounds great, after doing research liuterally for years, well...we'll just say i am a huge metformin advocate. Yes, I know it doesn't work for "everybody"...but statistically, it works for SO MANY, i think that anyone who knows they have PCOS and wants to TTC, really shoudl give it a whirl.

I'm assuming you hyperstimulated on the clomid?
*IF* you go back on the met, that alone should be enough to restore normal ovulation...if it does not, then you *might* be able to add a "small" dose of clomid to the met, and be able to conceive without hyperstimulating. It all depends of course, but the dosages i most commonly here are 1500-2000/daily of met with an optional 25-50 of clomid IF necesary. But again, statistically, the met might do it by itself.

Or the BCP suppress-ovulation-to-force-ovulation thing might work for you.

Also, i would look at vitmain supplementation. I knwo naturopath have differing opinions, but we believe in mega-dosing the vites and minerals here, and it worked for us. At the very least a GOOD whole food high potency mutli vitamin supplement with extra folic acid as needed(to a total of at LEAST 800mcg/day) should be taken daily.

Fish oil supplements help, i prefer nature made with enteric coating because they are the ONLY ones i have ever found that do not give me fish burps....blech! Take at least the dosing on the bottle, or more.

ugh...brain shutting down..can't finction......

OH, as one last thing...has your dh been checked RECENTLY?????

We lost a YEAR of our battle with IF...dh was checked when we started....3 years later, we had my diagnosis of PCOS (finally), i started met, within 3 months i was ovulating and haveing BEEE-yutiful textbook cycles..well..9 month later, having done the deed every month at the right time, ovulation confirmed, etc....still no pregnancy...On a whim, we decided to have dh checked again...sperm count almost ZERO. *sigh* He had developed a problem, which the docs say can happen at any time.....Luckily, it was easily fixable, and we conceived the second cycle afterwards.

Not saying that is your issue of cours,e but if it has been more than a year since dh has been checked.....ahem, might be time to get the ole bottle out again....

Okay, really must sleep....

kkweight
07-02-2006, 11:57 PM
THANK YOU!!!!
After thinking aobut the Met since i posted last i am getting the feeling i should try to go on it again. I think i have just needed an outside opinion to confirm to me that its a good idea.lol I know its silly, but thats just the way i am at times.lol
Im still a little aprehensive about the BCP though. Its still something i really have to think about. KWIM?

Anyhow, thanks a ton for all of the responses, i really appreciate it!

anne_josh
07-06-2006, 05:21 PM
I have PCOS and the only thing that worked to get me to ovulate was injectable fertility drugs. It was a scary step to take, but now I'm glad I did it.

Christy
07-09-2006, 10:22 AM
I have PCOS too. It wasn't hard for us to concieve but very hard for me to keep the baby. I m/c'd many many times. :cry: I would love to have another but...it's pretty hard emotionally. Also, the cysts caused one of my ovaries to rupture while we were ttc #2 and the surgery and bleeding was awful and I'm scared of that happening again. It seems like anytime I go off the drugs to ttc I get SO many cysts. I wonder what causes PCOS. Does anyone know? Can it be passed down to my dd's?

Severine
07-13-2006, 12:23 PM
Christy - PCOS is hereditary, but it seems to run along the paternal lines rather than maternal. So there's little risk of you passing it along. (In my family, all of us PCOSers are on my father's side-me and 3 of my cousins-and we're all from the sons in the family, not the daughters.) Were you on Met during any of your pregnancies? Even if you're not IR, it helps prevent miscarriages, because the miscarriage rate for PCOSers is something like 40% when unmedicated, but Met brings it down to regular numbers for regular people. :( I lost my first and I still blame it on that, and the fact that the midwife I was working with at the time totally dismissed my PCOS and said it wasn't anything to be concerned about, that I probably didn't even have it. :banghead: But once I switched to a practice who took me seriously (and saw an endo in conjunction with them) I was able to get pregnant again and the pregnancy "took", so to say.

Yes, I have PCOS. It was diagnosed right before we started TTC the first time, but I've had symptoms of it since I was 18 and it really should have been caught back then. I'm on 1000mg Metformin Sustained Action (aka XR) daily to keep my androgens in check and help with cholesterol levels (it helps, although not much). I'm also on Yasmin to help with hormone levels, but I will be going off of it once I finish this pack on Saturday to prepare for TTC again. If I had not been on BCPs for the 8 years before TTC the first time, I probably would have had a much harder time getting pregnant. I worry a lot about this time. But it's out of my hands.

kkweight - You should try Met XR. It has a reduced incidence of s/e and you only have to take it once a day. I've gotten to the point where I don't even have to take it with food and I suffer no s/e (that is, unless I eat a bunch of crap, which is rare these days).

kkweight
07-17-2006, 04:14 PM
To the best of my knowledge they are exactly sure if it is heredity or not. I was just in a year long study at Hershey Medical because they are trying to find a genetic link, a link in the cholesterol levels, or a link in the environment. The study isnt concluded yet, but they havent pin pointed the exact cause yet. This is one of the first government funded studies that is being done. My dad had to participate and my mom and 2 sisters and my DD.

Severine-
Met XR is the one that made me so sick. I adjusted alot of things and stil i couldnt find relief. its just one of those things that either i can take and just bare the side effects or not take and second guess myself weather i should be on it or not.
Ive opted out of being on BCP at this point, ive known ive had the PCOS for 9 years and out of those 9 years i was on BCP for 6 years. I honestly feel no difference being on them and not. In the ultrasounds from when i was on them and not are no different. For some people they are a great tool to have for others, they make no difference.

silvermoonmyst
07-17-2006, 07:29 PM
Im a PCOS mom, im also TTC. Its been rough, espceially with the cycts, and the lack of periods. Its really stressful.. Its alot more comment then i ever thought it could be.. I never even heard of it before, and now.. i cant believe how many moms have it.

Severine
07-19-2006, 01:25 PM
Kalley - I'm sorry Met XR didn't work out for you. That's the hardest part about PCOS. It manifests itself in so many different ways, and what works for one doesn't work for the next. Very frustrating.

I know when I talked to my OB about PCOS, we discussed the hereditary tendency of it. Their office was running a study at that time (I was pg so I wasn't eligible). I've also discussed it with DD's pediatrician, as he also has a special interest in PCOS (and now has her marked for early screening, though I doubt she will have it).

curious_george
07-30-2006, 07:29 PM
It's frustrating having pcos and ttc. We too struggled with ttc for 4 years before Hamish. I still feel like he's a miracle, that it would be almost selfish of me to try for another kwim? At any rate we are contemplating ttc again... but have the dilemma of whether or not to take the met or not. I was on an anti-depressant after H was born and gained 40 lbs (ouch!) and then even more on Avandia this spring and gained 15 lbs more on it... so I'm feeling like we need to lose weight before we ttc #2.

About the met and the side effects... I found that I couldn't eat anything carbohydrate-y or sugar-y without massive upset tummy. groan! Perhaps another reason why we're delaying ttc? If/when you do try the met again try it with a little protein/fruit/veggie snack or glass of milk. That's what helped for me.

on a related note... have you heard of vitex (herb)? I tried it with some success when I was taking the alternative route with the infertility.

kkweight
08-01-2006, 04:52 PM
Yes i was opn the Vitex and my Naturopath took me off. IT didnt work well for me at all.