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sunnymommy 01-29-2012 08:10 PM

baby gross motor delayed...
 
My son is 11 months old. He schooches kind of like an army crawl but he uses only his left arm and right leg to push/pull, not alternating. He can't get back to sitting if he falls over. Is he just really slow? Should we be worried? My oldest army crawled until around 10 months I think and didn't walk until 16 months. So I guess my kids are just slow physically?? Or does he need help - therapy or something? He was actually tested for DS just last month and that was negative, but Dr said something about taking him to a geneticist for further testing of "minor chromosomal abnormalities" if we wanted. I don't really know what she was talking about :headscratch: and my dh answered the phone and is not the type to ask questions. He has wide set eyes with creases at the inner corners and likes to have his tongue slightly out between his lips. So he sometimes resembles common DS features, and I have actually been asked by a stranger if he had DS. But, he does not have small stature (he is a giant), creases on his palms or feet, or other common characteristics. What do you think?

eta: he is also "speech delayed" as much as a baby can be I guess. He doesn't babble or make consonant sounds, just coo vowel sounds. But, again my oldest started speech before she was 2 and is still in it now at 7yrs old and she doesn't have any other issues. He does sign and communicate what he wants including pottying as we EC.

astutzman 01-29-2012 09:08 PM

Re: baby gross motor delayed...
 
I do not know which programs exist in NE, but in IN, where I live, there is a state program called first steps. They come into your home and evaluate your child, if your child is behind, gross motor wise, fine motor wise, speech, developmentally etc they will provide him with therapy sessions, in your home or daycare, to help him catch up. Here this program only exists until their 3rd birthday. I would ask his pediatrician about it. I know all of this because I went through it with my ds. I think it is encouraging that he uses opposite arm/ leg combo to crawl. (my ds suffered a stroke at birth and had obvious weakness on the same side). I guess my point is, it wouldn't hurt to find out which programs exist, and it could really help him to catch up. As far as the geneticist is concerned, I think I would go ahead and test him, if it were me. My heart goes out to you momma, I will keep you and your family in my prayers!

Minniebees 01-29-2012 09:40 PM

Re: baby gross motor delayed...
 
Your post sounds similar to some things that we had going on with my youngest. She is 3.5 now, and fairly caught up. Maybe a 6-8 month delay. We never figured out for sure what was going on with her, the closest we got was that she had a very mild cerebral palsy and would be caught up by age 5, probably. that seems to be fairly on the mark, now that she is older.

Anyway, she developed and grew pretty normally until about 6 mo old, and then she stopped doing both completely. She didn't grow or make major milestone for about 6 months. When she did finally crawl, she only used one arm and drug her leg behind her. She had a language delay. She was basically delayed in every area. We saw specialists, and she was evaluated by EI, and was borderline for getting services. After seeing everyone we could see, we finally talked about it and decided to be at peace with who she is, enjoy her infancy and toddlerhood, and if it was something serious, it would probably make itself known as she got older.

Anyway, if you are concerned, talk to EI. See genetics, and any other specialists, but often delays like my dd had remain unexplained, and kids like my dd outgrow it. I do expect that by the time she hits Kinder she will be pretty much the same as the other kids. She did finally grow, and now she is even a bit tall for her age! She spent almost all of her life off of the growth chart completely.

Try not to worry, and if the docs you see think that specialists are in line, then I'd do that, and I'd call EI as well. But also be aware that there may be no answers. Maybe there are. But with 3 kids who all have issues, 2 of them are total puzzles. I think that is pretty typical. :hugs:

Rdesonia 01-31-2012 05:08 PM

Re: baby gross motor delayed...
 
If you have concerns, I would go see a geneticist. I actually will be seeing one on the 2nd for my dd. She has abnormalities but we don't have an exact diagnosis. We feel it is important to get an exact diagnosis if possible. This will help us and the doctors to know what to expect and what to watch for. We also planned on having another child. We want to know if this is a fluke or a certainty for future children. (My ds has a different father).

Most places have early intervention programs through the schools. This is FREE from birth! They will evaluate your child and come to your home. They will offer help and suggestions on how to help your child improve in communication, motor skills etc. Our lady comes 2x a month to the house. My daughter is not yet 7 months old. They also usually offer FREE speech therapy/ occupational therapy if needed. I live in a small town of 3000 but in larger areas they have parenting classes, clinics, seminars with free babysitting. etc.
We have really been racking up the medical bills even though we have good insurance. We don't qualify for anything based on income so getting free help from the school was a nice surprise. It is especially nice they come to the house because truthfully I am terrified to take my dd places. When she starts screaming bloody murder randomly for hours... people tend to look at me like I'm a horrible parent.

jamieism 01-31-2012 05:24 PM

My great nephew did this - turned out one of his hips was dislocated. They adjusted it and he was walking very soon after. Have you taken him to a chiropractor?

Sent from my iPad using DS Forum

sunnymommy 01-31-2012 07:41 PM

Re: baby gross motor delayed...
 
Quote:

Originally Posted by jamieism (Post 14562875)
My great nephew did this - turned out one of his hips was dislocated. They adjusted it and he was walking very soon after. Have you taken him to a chiropractor?

Sent from my iPad using DS Forum

Yes, he has been adjusted regularly since birth :thumbsup:

His appointment for evaluation by the early education services is next week. I don't know whether I am hoping he qualifies for services or not :headscratch:

I just don't know about the geneticist. I don't want him to have to go through the whole giving blood, etc. again unless it's more than a passing concern / more than A slight chance that there's something we need to know about. I just don't know how to gauge the concern level. I will talk to his ped in a few weeks at his 12 mo check up. Just wish I had answered the phone instead of dh when she called with the first test results.

Dmpmercury 01-31-2012 08:11 PM

Re: baby gross motor delayed...
 
It does sound like he might need therapy for gross motor issues and maybe even speech. I would go ahead and schedule an evaluation. He should be able to sit himself at least and should be using both sides equally.

daisy7843 02-03-2012 11:28 PM

Both my kids were in early intervention. I cried when they told me my son qualified and I cried again the day my sons therapist told me I needed to have my daughter evaluated. They completed EI and now do PT and OT once a week through the children's hospital. Our early intervention eval included a nurse practitioner who suggested we see a geneticist. She saved my children's lives, they do have a genetic disorder, Short Chain Acyl CoA Dehydroginaise Deficiency. I just assumed they were a little delayed. Might be something to talk over with your pediatrician.

mekat 02-04-2012 12:09 AM

Re: baby gross motor delayed...
 
It sounds like you are on the right track doing an early intervention eval. Tests are tough but if there is an underlying syndrome there may be more problems with him physically then what meets the eye. One of the first things they did when they suspected chromosome abnormality in my kiddo was to run various tests to find out the extent of the physical problems present. If you and your ped are confident that physically he is fine other then what is presented in your post then seeing a geneticist is a personal call IMO.

I am listening to a genetics lecture on ItunesU. In general, the stats the geneticist gives during the lecture points to less anomalies equals a higher chance a child will go undiagnosed even with full genetic & metabolic testing.

Also it is still possible but highly unlikely your child could have a form of down syndrome called mosaic down syndrome in which case the T21 cells may only be present in some types of cells like muscle or bone etc.... Obviously if that were the case it wouldn't be in the blood cell line since more then likely it would have been found on the test. Genetics is complicated and there are still a lot of unknowns so going to a geneticist isn't going to guarantee you answers. IMO the most important thing to know is if there are any physical problems you need to be aware of, forewarned is forearmed.

Maddalena 02-05-2012 12:50 PM

Re: baby gross motor delayed...
 
Hi. I have a boy with gross motor delay. He's 16 months and met all his mile stones way late and still isnt standing by himself without holding on to something, not crawling and definately not walking. I expressed my concern with his Dr who helped us get in touch with a state funded program called step by step (we are in NY) and got him evaluated. He has been getting physical therapy for about two months and has learned to get in to a sitting position from laying down, pulls himself in to a stand using furniture, cruises holding on to furniture ect! Physical therapy can help so much! Get him evaluated asap so at least you know what youre up against here. It doesn't sound severe even if he did have some minor stuff going on I bet with a little help he could catch up very quickly and hopefully go on and have a normal life :)
BTW my first child is autistic so I was very nervous the baby would be too but thankfully he seems unaffected. Any way my oldest did NOT get any early intervention and I think if he had gotten it he would be in a much better place right now. He's 13 years old and struggling. Smart as a whip but NOOOOO common sense lol!


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