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Maddalena 07-11-2012 10:42 AM

endometriosis
 
Does anyone have it? What treatments did you have done? Were you able to concieve with it?

meeshkasheeba 07-11-2012 11:39 AM

I have endo severely. I have had several surgeries and I am half way through my second lupron treatment. I do have two beautiful boys with only one ovary and fallopian tube and until now had never felt the need for a specialist. I have been dealing with this for 9 years now and would be happy to help you with info I have gathered along the way. I am on my phone but can check back later when I get home to give you some other info. There are several of us on here with it though so I am sure you can get some other input.

Maddalena 07-11-2012 12:53 PM

I suspect I might have endo. I went to my obgyn yet again TTC he put me on peogesterone all month and gave me 5 refills. I researched it when i got home and saw its a birth control and sometimes it helps w endo. Idk, I had a baby in 2010 and had him via c section , you'd think someone might have noticed if i had it but who knows. So any who....IF I have it how could i help treat it besides birth control? Any diet or suppliments?

Wanderlust 07-11-2012 03:43 PM

Re: endometriosis
 
I have endo- it's a mild case. I didn't know I had it until I had an exploratory laprascopic surgery to see why I couldn't get pregnant. The surgeons found endometriosis growth around my tubes and cleared that out. They told me the optimal time to try to get pregnant naturally is within 6 months of the surgery.

We had other fertility issues besides endometriosis, so we still ended up doing IVF ICSI.

Other than birth control pills, staying pregnant and laprascopic surgery, I don't have any advice on slowing the growth.

Maddalena 07-11-2012 09:06 PM

Quote:

Originally Posted by Wanderlust
I have endo- it's a mild case. I didn't know I had it until I had an exploratory laprascopic surgery to see why I couldn't get pregnant. The surgeons found endometriosis growth around my tubes and cleared that out. They told me the optimal time to try to get pregnant naturally is within 6 months of the surgery.

We had other fertility issues besides endometriosis, so we still ended up doing IVF ICSI.

Other than birth control pills, staying pregnant and laprascopic surgery, I don't have any advice on slowing the growth.

That's how I got pregnant w baby Gino I think, the drs went in and did an hsg which probably cleared out my tubes and three months later i was pregnant.

meeshkasheeba 07-12-2012 07:45 PM

Re: endometriosis
 
Mostly Wanderlust covered it. Also though, you should not microwave in plastic because of the dioxin released. Dioxin is in all kinds of things. Feminine products, any bleached paper products, plastics, and so on. There have been a few studies done on this and I'm not willing to take chances. I also avoid processed soy products as best I can because it can raise you estrogen levels and estrogen is what feeds the endo. I am recently gluten free to help with the pain. There are also lots of suggestions that you should avoid processed sugars and dairy, and even goat meat to help the pain but I don't know that it will help you if you don't really have symptoms other than fertility issues.

If you have been TTC for a while ask your gyn if they will do another hsg.

Maddalena 07-13-2012 07:54 AM

Quote:

Originally Posted by meeshkasheeba
Mostly Wanderlust covered it. Also though, you should not microwave in plastic because of the dioxin released. Dioxin is in all kinds of things. Feminine products, any bleached paper products, plastics, and so on. There have been a few studies done on this and I'm not willing to take chances. I also avoid processed soy products as best I can because it can raise you estrogen levels and estrogen is what feeds the endo. I am recently gluten free to help with the pain. There are also lots of suggestions that you should avoid processed sugars and dairy, and even goat meat to help the pain but I don't know that it will help you if you don't really have symptoms other than fertility issues.

If you have been TTC for a while ask your gyn if they will do another hsg.

Thank you. I am older and have signs of estrogen dominance so yeah...no soy for me. I'm trying so hard to eat better.

galesville1980 07-18-2012 11:52 AM

Re: endometriosis
 
I have endo stage 2..I had two surgeries I did get PG but lost both of them around 6 weeks (we did 9 IUI's). Im not sure endo was what was stopping me from getting PG though? We were labled "unkown" infertility. Like PP said BC does help with endo...the bad thing is fert drugs make endo worse....so it is such a catch 22 for people that have endo and ttc using fert drugs...

TexasMelanie 07-18-2012 08:18 PM

Re: endometriosis
 
I have stage I/II endo. I had some pain as a teen but never paid much thought to it. I went on BCPs right before my DH and I got married. Two years later went off them to start TTC. Within three months I was in so much pain it was unreal. Had a lap about 10 months later and they found endo around my tubes and also took out my appendix.

We did finally conceive naturally about a year and a half later.

We never did avoid after our son was born and when he was about 18 months old I had another lap. This time my doctor was shocked by the amount of adhesions around my right ovary (the only one I ovulate from). She couldn't even find my ovary without risking cutting something. I was devastated. I went on Lupron for 3 months and we let it go, hoping that a miracle would happen. After a total of TTC#2 for four years we did IVF with ICSI and got pregnant with our daughter. I still have hope that something will happen but I know it's not likely and so far, 18 months later, nothing.

I know eventually I'll have to have another lap again but thankfully my pain is slow in returning this time around, thank God!

Cleokatrah 07-19-2012 04:37 AM

Re: endometriosis
 
Minor case here, too. It is not on my reproductive system, but on my bladder. I get UTIs fairly easily and overactive bladder. It also gave me a bacterial infection which gave me a TON of polyps. Had a laparascopy in November 2010 and got pregnant 7 months later, FINALLY, after 7 years trying. We didn't know I had Endo until I switched doctors and he asked me a couple questions no one had asked before. As far as I'm concerned, he's the reason I have a baby so God Bless Him to pieces :-)

Haven't had a pap since my DD's birth so I don't know if it's come back. I thought it might be cause I was getting pains again, so we'll see.

I want to give prayers and wishes to all you ladies with chronic Endo. I couldn't imagine my life without my child and it is just heartbreaking to know there are loving women out there who struggle so much.


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