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missykay 08-01-2012 09:09 PM

Reviewing Medical Records
 
Did any of you review your child's (children's) medical records? My son just turned 2. He was a full term birth in a free-standing birth center. He turned blue and had poor breath sounds about 30 min after birth. He was transferred by ambulance to a local NICU. Turns out he aspirated so much amniotic fluid and blood (no meconium though) that his lungs never fully inflated. He was given surfactant and placed on a vent for 3 days. We only had an 8 day stay overall and have had no health problems since then.

I'm in weekly therapy for an anxiety disorder and had some PTSD symptoms for about 8 months after Paul's birth. I had a miscarriage at 11 weeks of a surprise pregnancy back in Dec 2011.

I'm not sure if my desire to read these records is some sort of crisis or an actual desire that I should "indulge". I scheduled an appt to go review them next Tues. For those of you who have done this before, any tips/suggestions? Anything you felt that you weren't expecting? Did you find reading the records to be helpful? Thanks!

Belle1002 08-01-2012 09:40 PM

I have read the medical records for my children, but there are some unique circumstances. I work in healthcare and deal with medical terminology/labs/documentation all the time, so much of what I read as normal care can be misinterpreted by people who are unfamiliar with it. Also, my children were adopted, so their medical records were the only way to know what happened at birth, as we were not there.
Your mental health professional should be able to help you decide if this will help you. For me, it was the only way to get information, but I can't say that I would have done it under different circumstances.

huntressxx 08-01-2012 09:42 PM

Ive read them... My dr was full of ****:S almost none of it was true

mibarra 08-01-2012 10:24 PM

I did. Mine was an emergency C-section so I didn't remember a lot and my DH wasn't in the room. It scared the **** out of me. Turns out they had to do CPR on my DD until they could get her ventilated, she needed a ton of medication and a blood transfusion. I'm sure they told me all this (DH knew), but I was still pretty doped up for the rest of the day. She was so sick they had her in an open warmer because they didn't want an incubator in the way if something went wrong. It's good to know what's in there, but it's not easy.

3 ladybugs 08-02-2012 04:55 PM

Re: Reviewing Medical Records
 
I only got the records for my son that lived 28 minutes. It was 11 pages long and I felt it was a good connection to him. After all he died in the delivery room.

My other 3 children (NICU babies all, 2 died) I didn't want their records. I trust those people completely and in the case of my daughter (lived 5 months 5 days all in the hospital) I had reviewed many of them while they were happening anyway. Nurses were asking me questions like where the good thermometer was and such during her stay. :giggle2:

To me I saw this as going to the sausage factory to see how it is made. The end of the day it doesn't matter and why get mad about something that can't be changed.

Full disclosure, my son Alexander, died of a yeast infection caused by poor hand washing. That is the only way he could have got what he got. We didn't want to sue because no amount of money would give me my son, and honestly that is all I want (he would be 6 years old now). The diagnosis was on his death certificate. See what I mean about going to a sausage factory to see how it is made?

Good luck! I hope it brings you some comfort. For me it would just make me not trust any doctor anymore and honestly I can't have that especially since I am in another high risk pregnancy. :hugs:

mekat 08-07-2012 12:01 AM

Re: Reviewing Medical Records
 
I haven't accessed all of Alec's records but I have accessed a few of them. I pulled all his MRIs from his NICU stay (at least 3 head/spine and 1 full body MRI). I found it to be confusing. I understood the language just fine but the findings contradicts follow up x-rays and MRIs. I think the radiologist on duty at the NICU wasn't very good at reading the MRI images since I have had four different specialists evaluate images of his spine and all their finding contradict the NICU findings. I have also pulled the neonatologists diagnostic summary which really helped me research because I finally had the correct spelling for some of his medical conditions.

The only real good reasons I find for pulling medical records, is to help with research and going to a new doctor who needs more background information. I don't see anything wrong with pulling them just because but I also don't see any real point to it either.

Never ever let a nurse review the records and diagnoses with you. I can't tell how much awful misleading information I have gotten by doing that. Only review the records with a doctor or look up the information yourself. Seriously, I had a nurse tell me my child was blind and when I told her "He could see, thank you very much" she said oh it is progressive and he will go blind (also false although some can go completely blind from complications). Yes, he is vision impaired but blind and vision impaired are not even in the same ball park and if she had even bothered to pick him up she would have seen even as a newborn he was studying people's faces and tracking movement visually. The truth is she didn't know all the proper medical terminology and somehow thought bilateral optic nerve colobomas were tumors on the optic nerve. Nope, it means the failure of the optic nerve to form fully. Clearly someone was not an A student in nursing school. And that is just one example, I could give more of why not to let a nurse review medical records. That also goes for medical residents as well those at the very very tale end of their residency can be trusted with normal uncomplicated cases but don't think of even giving them even the smallest of a curve ball because they will be out of their depth quickly.


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