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-   -   Any others here on DS with Noonan Syndrome? (http://www.diaperswappers.com/forum/showthread.php?t=1443233)

court3189 09-13-2012 11:55 PM

Any others here on DS with Noonan Syndrome?
 
With a prevalence up there with Down Syndrome, I've got to believe we're not the only one's here ;)

l_Kimmie_l 09-17-2012 12:19 PM

Re: Any others here on DS with Noonan Syndrome?
 
My BFF's son has it. It was a random mutation. I told her to join here as she knows no one else with a child with it. Her son goes to my son's school and is in his class. My boy has PDD-NOS.

court3189 09-18-2012 10:35 PM

Re: Any others here on DS with Noonan Syndrome?
 
Thanks! If she wants to message or email me let me know! If she isn't aware of it-let her know there is a pretty active facebook group, the one titled 'Noonan Syndrome Family'. How old are both your boys?

l_Kimmie_l 09-19-2012 07:45 AM

Re: Any others here on DS with Noonan Syndrome?
 
Quote:

Originally Posted by court3189 (Post 15701990)
Thanks! If she wants to message or email me let me know! If she isn't aware of it-let her know there is a pretty active facebook group, the one titled 'Noonan Syndrome Family'. How old are both your boys?

I will, she does have facebook. I will have to tell her about the group. She feels so lonely at times. My boys are 15, 4, 3, and 5 months. Our 4 year olds are in the same class. My 3 year old is also close to her son. He is 4 too.

devon 10-04-2012 08:21 PM

Re: Any others here on DS with Noonan Syndrome?
 
I'm on here occasionally but you already know me via FB :)


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