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reneaumommy 09-17-2012 11:45 AM

Aspergers? update post 19
 
I'm fairly certain my soon to be 5 year old son has Aspergers. My mother agrees. My husband is unsure. I mentioned it to a close friend who has a son the same age. She said she didn't think he had it. Then she went home and read up on the symptoms and said she thinks he might. I have known something was different about him since he was 7 months old. I had him screened by EI at 2 1/2 and have sought help from the doctors in the past. I made an appointment with the Pediatrician for this Friday and I'm going to ask for a referral to the behavioral psychologist.

His main issues are his intense obsession with Lego Star Wars. It is the only thing he talks about.

He also has to be holding the tag in his clothing all day.

There a bunch of other stuff as well. He has colors he obsesses on (orange and green). He had a red car bed and for months refused to sleep in it because it was red. We finally got rid of it and gave him a plain twin bed on a frame and he was ok with that. He also will only certain foods. FOr example he used to eat vanilla ice cream. He tried chocolate and now will only eat chocolate. If there is only vanilla available he will go without. He refuses to eat treats such as fruit snacks if they are Dora ones. He will go without saying he only eats Star Wars ones.

He has so many "issues" but is extremely smart. He started speaking at 7 months. His vocabulary is off the charts. He is also very hyper.

Any advice on thing to ask the doctor?

jenn5388 09-17-2012 12:27 PM

Re: Aspergers?
 
What was the assessment at 2.5 by EI for? Autism? what did they say then? Seems they would of picked up on it then, but I'm no expert.

He seems like he surely has his little quirks.. what does he mess with the tags of his clothing for? Do they bother him? does he like to just touch them?

does he have any anxiety issues at all? is he in any kind of school setting? what does the teacher say?? (this was the first time I heard Aspergers, but I knew something was going on with her much earlier)

Miranda has Asperger's, and alot of these things describe her, Very much into routine, things have to follow a certian order or she completely freaks out, like taking a different way to school she would loose her mind, huge tantrum, yes, she's 8, and throws tantrums like a 3 year old, unfortunately.
and she has her obsessions (yoshi/mario mostly) and she dresses in costumes, Almost everyday. 100% of kindergarten was in some kind of costume, and 75% of 1st grade was in costume of some sort, or atleast clothing that looked like costume, like a red shirt and blue jeans everday to resemble mario, she was also a boy, named Zach. it was wrote on everything and her teacher called her Zach. lol

This year, so far, no costumes, no name changes. *fingers crossed* that the costumes are left at home from now on. Miranda is also very bossy, as one would see it. She controls just about any area of play, and if one of her friends decided to play something else, she'd just continue to play what she wanted to play and not "give in" so to speak to thier game/ideas. Also, everyone is her bestfriend. She can't tell the difference between someone she only sees at school, and someone that comes to her birthday parties, over for playdates, that she goes over to thier house to play, etc.. She could know the kid for 10 minutes, and it's her bestfriend. Thankfully, in second grade, it hasn't been a problem yet, but I can see her getting her feelings very hurt in the future.

years ago she had a hard time telling if someone was upset, happy, mad, etc.. She can't figure out sarcasm,(whihc is hard, because I'm very sarcastic sometimes, lol) if they are crying, she won't ask them if they are okay, feel bad for them etc.. she feels no remorse, or didn't. You would tell her to tell someone else sorry for something, but you could tell she wasn't feeling that way.. ever. thankfully, with a couple years of therapy, we've gotten much better. she does feel bad for things she does now. She's actually cried when she's hurt people because she feels so bad. She's asked me if I was okay before when I've cried, Yelling at her still holds no importance to her. She doesn't know you're mad unless you tell her your mad. It's such a interesting disorder, really.

I will save you the long drawn out food, but Miranda does alot of the same things your son does, won't eat certian things because they are shaped different, different colored..different brands are a big one. I buy the generic and put that in the saved brand name she likes after she's sleeping just to save the fight. had to do that with cereal and chocolate milk mix for YEARS.. she's finally accepting the other brands. she wouldn't eat any other kind of pasta but elbow for years, i've got her to branch out after YEARS of working with her to other noodle shapes.

Miranda also has SEVERE anxiety. She's scared of everything. (anxiety is a large part of Aspergers)

I wouldn't be asking the doctor much, but for a referral. I would tell her about different things your son does, and I suggest you write down all the things he does, because if you are anything like me, once put on the spot to remember, your mind draws a blank. lol I just got Miranda on meds, and the doctor was asking about different things she does, and I couldn't think. lol great timing huh? lol We were in there for the anxiety though mostly. Miranda is also a hoarder. For as long as I can remember she would hide food.. now her room looks like the hoarding: buried alive show.. NO JOKE. and if you clean it up/ask her to do so, she acts like you just cut off her leg. It's rough.

reneaumommy 09-17-2012 03:24 PM

Re: Aspergers?
 
Quote:

Originally Posted by jenn5388 (Post 15694377)
What was the assessment at 2.5 by EI for? Autism? what did they say then? Seems they would of picked up on it then, but I'm no expert.

He seems like he surely has his little quirks.. what does he mess with the tags of his clothing for? Do they bother him? does he like to just touch them?

does he have any anxiety issues at all? is he in any kind of school setting? what does the teacher say?? (this was the first time I heard Aspergers, but I knew something was going on with her much earlier)

Miranda has Asperger's, and alot of these things describe her, Very much into routine, things have to follow a certian order or she completely freaks out, like taking a different way to school she would loose her mind, huge tantrum, yes, she's 8, and throws tantrums like a 3 year old, unfortunately.
and she has her obsessions (yoshi/mario mostly) and she dresses in costumes, Almost everyday. 100% of kindergarten was in some kind of costume, and 75% of 1st grade was in costume of some sort, or atleast clothing that looked like costume, like a red shirt and blue jeans everday to resemble mario, she was also a boy, named Zach. it was wrote on everything and her teacher called her Zach. lol

This year, so far, no costumes, no name changes. *fingers crossed* that the costumes are left at home from now on. Miranda is also very bossy, as one would see it. She controls just about any area of play, and if one of her friends decided to play something else, she'd just continue to play what she wanted to play and not "give in" so to speak to thier game/ideas. Also, everyone is her bestfriend. She can't tell the difference between someone she only sees at school, and someone that comes to her birthday parties, over for playdates, that she goes over to thier house to play, etc.. She could know the kid for 10 minutes, and it's her bestfriend. Thankfully, in second grade, it hasn't been a problem yet, but I can see her getting her feelings very hurt in the future.

years ago she had a hard time telling if someone was upset, happy, mad, etc.. She can't figure out sarcasm,(whihc is hard, because I'm very sarcastic sometimes, lol) if they are crying, she won't ask them if they are okay, feel bad for them etc.. she feels no remorse, or didn't. You would tell her to tell someone else sorry for something, but you could tell she wasn't feeling that way.. ever. thankfully, with a couple years of therapy, we've gotten much better. she does feel bad for things she does now. She's actually cried when she's hurt people because she feels so bad. She's asked me if I was okay before when I've cried, Yelling at her still holds no importance to her. She doesn't know you're mad unless you tell her your mad. It's such a interesting disorder, really.

I will save you the long drawn out food, but Miranda does alot of the same things your son does, won't eat certian things because they are shaped different, different colored..different brands are a big one. I buy the generic and put that in the saved brand name she likes after she's sleeping just to save the fight. had to do that with cereal and chocolate milk mix for YEARS.. she's finally accepting the other brands. she wouldn't eat any other kind of pasta but elbow for years, i've got her to branch out after YEARS of working with her to other noodle shapes.

Miranda also has SEVERE anxiety. She's scared of everything. (anxiety is a large part of Aspergers)

I wouldn't be asking the doctor much, but for a referral. I would tell her about different things your son does, and I suggest you write down all the things he does, because if you are anything like me, once put on the spot to remember, your mind draws a blank. lol I just got Miranda on meds, and the doctor was asking about different things she does, and I couldn't think. lol great timing huh? lol We were in there for the anxiety though mostly. Miranda is also a hoarder. For as long as I can remember she would hide food.. now her room looks like the hoarding: buried alive show.. NO JOKE. and if you clean it up/ask her to do so, she acts like you just cut off her leg. It's rough.


The EI eval was for his behaviors. At that time he was extremely hyper and his behaviors were not age appropriate. I thought at that time we were headed for a ADHD diagnosis. He has also always had the sensory issues.

I asked him why he touches the tags and he says he likes the way they feel.

He is a very anxious kid. I try to prepare him for situations in advance and that helps a lot with the outcome.

He was in a YMCA preschool 2 years ago and he was awful. It was less structured. Due to his behaviors he was admitted into the school district preschool last year and this year and he has done amazing at school. Very structured and interesting lesson plans. He is very bright and if he's bored he acts out.

He often invites people children/adults he meets when in public to come to our house to play lego star wars on the playstation. He does not have many friend his own age. We went to a birthday party and there were about 6 little boys his age all running around. He spent 3 hours building some elaborate Lego with an 8 year old that was there.

I have been making a list of behaviors. I have 12 pages full of things I thought might be relevant. I also got his baby book out and noted when he met milestones in case they ask about those.

abunchoflemons 09-17-2012 03:46 PM

Re: Aspergers?
 
Could but could be just other autism stuff too. My mom had a boy that had to come in go around room & do a whole ritual b4 stitting down & constantly seemed to need to get out of seat for "stuff"/questions.

Ky-Momma 09-17-2012 03:57 PM

Re: Aspergers?
 
My 5 yo and my DH have Asperger's. I agree with the PP that anxiety plays a big role in AS. Also, how is he with eye contact? Does he make eye contact when he speaks to you? Jonah will look every where but AT the person he's speaking to. When I ask him to look at me when he's speaking, he will now, but he starts fidgeting and gets very anxious and can't keep the contact.

The thing with Asperger's is that there are so many different quirks that go with it and no two Aspie's are the same. At our first ped appt where the possibility was brpught up, I didn't do much of the questioning, it was more answering their questions. I agree with the idea to have it all written down because my mind blanked at the million and one questions they were askng me. Good luck!

reneaumommy 09-17-2012 04:23 PM

Re: Aspergers?
 
Quote:

Originally Posted by abunchoflemons (Post 15695332)
Could but could be just other autism stuff too. My mom had a boy that had to come in go around room & do a whole ritual b4 stitting down & constantly seemed to need to get out of seat for "stuff"/questions.

I don't think so. He has an extensive vocabulary and spoke in full sentences by 1 1/2 years of age.

reneaumommy 09-17-2012 04:32 PM

Re: Aspergers?
 
Quote:

Originally Posted by Ky-Momma (Post 15695383)
My 5 yo and my DH have Asperger's. I agree with the PP that anxiety plays a big role in AS. Also, how is he with eye contact? Does he make eye contact when he speaks to you? Jonah will look every where but AT the person he's speaking to. When I ask him to look at me when he's speaking, he will now, but he starts fidgeting and gets very anxious and can't keep the contact.

The thing with Asperger's is that there are so many different quirks that go with it and no two Aspie's are the same. At our first ped appt where the possibility was brpught up, I didn't do much of the questioning, it was more answering their questions. I agree with the idea to have it all written down because my mind blanked at the million and one questions they were askng me. Good luck!

He won't look at me when I speak to him even when I ask him to. A lot of times he will just ignore me or seems to. So then I will tell him to look at me and he will acknowledge I am speaking but not keep eye contact while I speak.

When he speaks he makes eye contact and his face is very expressive. I have always said it is almost like I can see him thinking.

He is above average intelligence. His memory is excellent.

I put him on a soccer team and he hates it. The coach is a friend of ours and he is very good with him. This past Saturday the coach asked him if he wanted to play and Cullen said no and kicked the coach.

Ky-Momma 09-17-2012 07:59 PM

Re: Aspergers?
 
To me that does sound like enough red flags that I would be talking to someone. *hugs* I hope you get some answers. Neither my son nor my husband are vety expressive in their faces. My husband has learned the appropriate expressions but still gets them wrong sometimes and comes off looking weord. My son tries sometimes but never gets it right. His OT is working with him. He'll get there... eventually. LOL.

l_Kimmie_l 09-18-2012 08:07 AM

Re: Aspergers?
 
Quote:

Originally Posted by reneaumommy (Post 15694133)
I'm fairly certain my soon to be 5 year old son has Aspergers. My mother agrees. My husband is unsure. I mentioned it to a close friend who has a son the same age. She said she didn't think he had it. Then she went home and read up on the symptoms and said she thinks he might. I have known something was different about him since he was 7 months old. I had him screened by EI at 2 1/2 and have sought help from the doctors in the past. I made an appointment with the Pediatrician for this Friday and I'm going to ask for a referral to the behavioral psychologist.

His main issues are his intense obsession with Lego Star Wars. It is the only thing he talks about.

He also has to be holding the tag in his clothing all day.

There a bunch of other stuff as well. He has colors he obsesses on (orange and green). He had a red car bed and for months refused to sleep in it because it was red. We finally got rid of it and gave him a plain twin bed on a frame and he was ok with that. He also will only certain foods. FOr example he used to eat vanilla ice cream. He tried chocolate and now will only eat chocolate. If there is only vanilla available he will go without. He refuses to eat treats such as fruit snacks if they are Dora ones. He will go without saying he only eats Star Wars ones.

He has so many "issues" but is extremely smart. He started speaking at 7 months. His vocabulary is off the charts. He is also very hyper.

Any advice on thing to ask the doctor?

Sounds JUST like my 4 yr old and he is PDD NOS. His is Angry Birds and it is even bad at school that he has to earn talking about it by not speaking about it till lunch time, then he gets 3 minutes. Then the same thing happens at the end of the day. He perserverates on colors, food, activities, and it makes feeding him especially hard.

Rory is as sharp as a whip too, but holds himself back with the obessions. Mostly it effects his relationships, even though he is a chatter box and out going. I can say that he did not crawl and did not talk till over 2 yrs old.

reneaumommy 09-18-2012 06:15 PM

Re: Aspergers?
 
We are seeing the Ped on Friday for a referral. I am so torn sometime I think this has to be it and then I'm like no he's fine. But I think it has to be something.

I have felt he was different since he was about 6 months old. He has always been advanced academically but struggled with his behavior. At 7 months old he would slip on the ceramic tile floor and hit his head pretty hard and just keep on crawling like he didn't notice. From about 10 months until almost 3 years old when you were holding him he would headbutt you as hard as he could causing great pain and he would just laugh. There are tons of other things as well. He used to beg for M&M's and when I would give him 10 or so he would only eat the orange and greens ones (his favorite colors).


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