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Mama_K 02-18-2013 06:03 PM

Tethered spinal cord?
Does anyone have experience with a baby who is diagnosed with a tethered cord? I just had a baby three days ago and the pediatrician says he may have a tethered cord. We are having a ultrasound tomorrow but I am just really sad and worried about what this could mean for him.

thtr4me 02-19-2013 03:14 PM

Re: Tethered spinal cord?
No personal experience, but I do know a mama who's DD has very very severe tethering. Most kids have a very normal life following de-tethering, especially if caught before symptoms become too severe.

Has your pedi given you reasons why he believes the cord is tethered? Hoping that you are getting the best news possible during your U/S today, and lots of hugs and love to you and your new little wee one.

mekat 02-20-2013 01:53 AM

Re: Tethered spinal cord?
I wouldn't get too freaked out just yet. Chances are if they are just basing their concerns on a deeper then normal dimple or something superficial things will be fine.

If by chance he does have tethered cord then treatment will depend on the type of tethering and the degree of tethering. I will give you two warnings though.

1. At this young of an age the cord could be tethered but not restricted enough to show up during testing. If in a year or so symptoms show up do what ever you need to do to get someone to take it seriously and order a follow up MRI to double check. Yes, this personally happened with my son.

2. Even the lowest risk tethered cord surgery comes with 5% risk and the risks only get higher the more complex the surgery needs to be. I tell you this because parents of children with tethered cord tend to place emphasis on the risks of leaving things be but no one really talks about the dangers of neurosurgery. You need to make sure you go into this informed about both sides of the problem.

Mama_K 02-20-2013 10:50 PM

Re: Tethered spinal cord?
The ultrasound came back showing no tethering but it does show a small cyst which the pediatrician says we will evaluate further at six months of age.

thtr4me 02-21-2013 02:40 PM

Re: Tethered spinal cord?
So glad you got good news at the ultrasound!

mekat 02-21-2013 09:01 PM

Re: Tethered spinal cord?
Is this the type of cyst they found? If so prognosis looks promising and definitely a problem more easily dealt with then a tethered cord. :thumbsup: I'm not really up on cysts my son has a several spinal abnormalities but cysts are not one of them.

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