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momto3girls 04-14-2008 03:28 PM

Celiac disease
 
My pediatrician thinks my daughter may have this. She was 7lbs 3oz at birth and now at 12 months is 16lbs 5oz and 29.5 inches tall. She's not even on the growth chart. She is breastfed and eating table foods. We've seen a GI specialist who also recommends this too. Any advice would be appreciated.

AcrossTheUniverse 04-14-2008 03:39 PM

Re: Celiac disease
 
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mommymilk 04-14-2008 04:45 PM

Re: Celiac disease
 
Sounds like my son. Turns out he didn't have celiacs. It is easy enough to do a blood test to rule it in/out. Does she have loose stools? Bloody? Budda belly with a flat bum? Our GI and pedi swore up and down DS had it. He wasn't on the growth charts either...at 2 years he was 23 lbs and 31 inches. Bloody stools, constant runny diapers, yucky. Then one day it stopped. He was tested for everything and it all came back negative. He is finally growing!

I hope you find some answers soon!

momto3girls 04-14-2008 04:51 PM

Re: Celiac disease
 
Nope she doesn't have any of those things. They're calling her condition "Failure to Thrive". I'm beginning to hate that phrase. She's talking, meeting all her milestones, and has fat on her bones. She's just tiny. I do have an aunt who's allergic to wheat/rye and other foods. I just called her and she's never been tested for celiac disease.

mommymilk 04-14-2008 04:55 PM

Re: Celiac disease
 
I have celiacs in my family, and all sorts of other allergies. DS was labeled that too. He actually didn't grow at all between 18 months and 2 years. He is just fine. Looks healthy, just a little short!:goodvibes:

I knew a woman once who had a little girl that was tiny. They labeled her FTT also. Turns out, she is just a small girl. Mom isn't big, and this little girl is just a peanut. She eats like a horse, just doesn't gain much. Perfectly healthy though!

camdensmommy 04-15-2008 01:29 AM

Re: Celiac disease
 
Just wanted to mention because I am studying this right now too that young children often present with negative blood tests and biopsies for celiac's even though they actually have it. It is because there has not yet been enough damage to their gut and villi. One of the best ways to test for young children is to do a stool sample through Enterolab or a gene test swab, both are non-invasive tests.

val01 04-16-2008 10:13 AM

Re: Celiac disease
 
No suggestions - just hugs.

My DD is 16 lbs at 14 months, but she has a metabolic disorder. She will always be tiny. :hugs:

Valerie

momto3girls 04-16-2008 10:35 AM

Re: Celiac disease
 
Quote:

Originally Posted by camdensmommy (Post 3322452)
Just wanted to mention because I am studying this right now too that young children often present with negative blood tests and biopsies for celiac's even though they actually have it. It is because there has not yet been enough damage to their gut and villi. One of the best ways to test for young children is to do a stool sample through Enterolab or a gene test swab, both are non-invasive tests.

Do you have any references on this I can take to the GI specialist? We're suppose to go in May for our next weight check.

Two days ago my dd had a peanut butter sandwich with whole wheat bread. The next morning her poop was good. The one after & the one this morning was icky and had a funky smell. I think I'm freaking myself out. This is so frustrating. My older dd was about the same height, but 2lbs heavier at a year. I also have an aunt who's allergic to wheat among other things. She hasn't been test for celiacs. I told her to mention it to her allergist.


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