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Old 05-18-2010, 04:32 PM   #29
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Join Date: Jun 2008
Location: The Land of Corn Fields
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Re: thanatophoric dwarfism?

My experience with this is as an NICU nurse several years ago - and the outcome for that baby was essentially the expectations you were given. His mama and daddy didn't know until around 30 weeks, and he was born a few weeks after. I don't remember how long they had with him after he was born, I think it was less than an hour. They had no family history or genetic links, they were told it was just random.

I'm so sorry mama. I wish I had wonderful words of comfort for you. I'll pray for that miracle for your baby and for you.
Wife to C (1998) , Mommy to DD#1 (2004), DD#2 (2008) & DD#3 (2010)
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