05-18-2010, 03:32 PM
Join Date: Jun 2008
Location: The Land of Corn Fields
Re: thanatophoric dwarfism?
My experience with this is as an NICU nurse several years ago - and the outcome for that baby was essentially the expectations you were given. His mama and daddy didn't know until around 30 weeks, and he was born a few weeks after. I don't remember how long they had with him after he was born, I think it was less than an hour. They had no family history or genetic links, they were told it was just random.
I'm so sorry mama. I wish I had wonderful words of comfort for you. I'll pray for that miracle for your baby and for you.
Wife to C (1998)
, Mommy to DD#1