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Old 05-18-2010, 03:42 PM   #30
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Join Date: Apr 2009
Location: minnesota
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Re: thanatophoric dwarfism?

I'm so sorry. I work with babies that were told they were going to die and they are still alive. I have seen them come home on hospice and were given a short amount of time to live. A year or so later they are off the vent and trach is taken out. God is the only one that knows. I will be praying for you during this hard time.
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