Re: back from Infectious Disease Specialist
Annalee... yes they did the sweat test, his was a 5 so about as negative for CF as you can get. But she said they'll probably repeat it eventually unless they come up with another explanation. The thing is he's a fat baby, not small like you expect with CF. Still, she seems to think CF would explain a LOT so she can't bring herself to rule it out LOL.
Loch still gets probably 80% of his calories (more?) from breastmilk. She said thats good, b/c breatmilk boosts the immune system. But also bad because it affects their tests of immune function.
Kim, mom of 5