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Old 06-15-2006, 05:10 PM   #9
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masonite
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Re: back from Infectious Disease Specialist

Hmmm. Hopefully they will retest--we've met with a CF specialist a few times. I guess the chances of "error" on the sweat chloride test are really high if it is done on a "baby".

The specialist (I'm sure you already know all of this, but I'm just trying to share my knowledge, having been through all of this before), said that CF can cause different "symptoms" in different patients. Meaning that some people would deal with a lot of lung/resp. problems, some with a lot of bowel problems, and some with FTT. (My son has severe FTT and bowel problems), which is why he's now been tested for it three times!

It sounds like you've got some great doctors on your side working with you. I know how frustrating it can be to NOT know what is wrong with your child. They still don't know what is wrong with Camden.


I really hope all of these Dr's can figure something out with your poor sweetie. It's much easier to treat the actual "problem" than just the effects.
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