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Old 02-07-2012, 01:17 PM   #2
Jen's_4
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Join Date: Oct 2008
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Re: Velocardiofacial syndrome?

I don't have that--as a matter of fact I have no idea what that is. But I just wanted to say read everything online with a grain of salt. My daughter has focal cortical dysplasia (read: fancy words for a particular kind of brain damage). When she was first diagnosed I read everything I could find online. Almost all of it is about horrible, horrible siezures. My daughter has never had a siezure. Most of what I read didn't apply to us. So take heart, that some of that scary stuff might not be relavant. Take a deep breath, and remember to take time to enjoy your DD. It is all too easy to focus on outcomes, and obstacles, goals, and IFSPs, especially in the beginning. One day at a time....
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