Re: DS 28mo diagnosed with Bicuspid Aortic Valve
DS is having to wear the monitoring vest because of a possible Long QT. They definitely diagnosed the BAV today with the ECHO but the vest should tell us more. I just want results asap so we can deal with whatever it is or put it in the past. I have the down time because my mind goes to the worst places.
Is your DD have flow issues from her BAV? They told us he won't be restricted of any activity and it shouldn't cause issues until he's older and the valve has calcium build-up. But my friend who is a dr. told me to be leary of major bacterial infections because bacteria likes to live on malformed valves...