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Old 11-29-2012, 11:26 PM   #7
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UnderTheStars
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Join Date: Jul 2008
Location: between the Mississippi and a cornfield
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Re: Well, it's official...

Quote:
Originally Posted by jen_batten View Post
I'm so so sorry. That's horrible. I don't have any advice to offer, just . I hope that you get something figured out for your little man soon.
Quote:
Originally Posted by bluecandi View Post
Praying for you and your boy mama!
Thank you both.

Quote:
Originally Posted by Dmpmercury View Post
I'm so sorry. My heart goes out to you. That is devastating How could they not cover feeding problems. That is crazy and just plain wrong. Feeding is a huge medical concern. I'm so sorry. I hope they reconsider your request.
I can't tell you how many battles I've fought over the feeding thing. It drives me INSANE that so many places don't take it seriously. I was actually told once that we would have gotten coverage if my son had a G-tube, but they will NOT cover his therapy to keep him OFF of a G-tube? That is twisted. I hate it.

Quote:
Originally Posted by Hillargh View Post
Oh mama I'm so sorry. This may sound nuts, but have you tried contacting someone in other fields? For example, my midwife bartered. She knew tons of other doctors and resources in other fields, that would do the same for patents and kids in need. Where are you at? I'm sure you've tried everything, but I would like to try to help somehow

Sent from my Galaxy Nexus using DS Forum
I'm in IL, but I feel like I've explored every option I could possibly come up with short of winning the big lotto and paying for everything out of pocket. His main therapist (who I adore) called me and offered to give him private therapy sessions at a very discounted rate, but we can't afford it even so. At least, not at the frequency he is used to going, maybe once a month...but she was as crushed as I am because she KNOWS how difficult of a situation it is and what a complicated little guy my son is. They really bonded and it hurts to take that away from him, too.

I happened to be taking him to a well visit today and I spoke to his pediatrician about it. I'm not sure I understand the bartering system? but she said she'd write the insurance company a letter stating how necessary it is and offering to provide any medical evidence they need. The insurance company has seen most of that already though and they determined him ineligible because they saw his therapy as "maintenance" rather than "progress" (he has a pretty traumatic past with eating, in addition to complicated medical issues, so he moves slooooooooooow with progress).

At that same appointment, because of some other red flags, she decided to refer him to be tested to see if he falls into the autism spectrum. Obviously, the thought of that breaks my heart but on the same token, if he were dx with something of the sort perhaps that might open up more doors for him? I hate to wish for that...but...between that and the results from a genetic test that was done at Mayo, I guess I will just hope they find something bad enough to deem him *worthy* of help.
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[ mom to my cowboy ballerina and my boy-of-steel ]
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