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Old 02-01-2013, 02:19 PM   #9
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EmilyA874
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Join Date: Feb 2010
Location: NW Maine
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Re: Anyone have a child with congenital heart disease?

Nice to "meet" other heart mamas on here! My DS has Tetralogy of Fallot (TOF), he is 3 weeks old today so we are really just starting on this journey. We are lucky in that he is a "pink tet" and we got to bring him home not too long after he was born. He will have his "repair" surgery between 3 and 5 months old most likely. He is doing really well so far and not on any medications yet, though we were told to expect him needing to be started on lasix by our next cardiology appointment on the 13th.
zaeaton, we don't have any support groups near us either. If you are on facebook there is a really great group of moms of CHD babies/kids, it's called "Heart Mamas" if anyone would like a link you can PM me for it (not sure if I am allowed to post it?). It's really helpful to have people who have been through/are going through this to talk to.
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A, wife to S Mama to DD W born at home in the water on 3/23/11!
And my heart warrior DS N born 1/11/13!
<3 Did you know 1 in 100 babies are born with a heart defect? 1 of them is mine <3
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