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Old 02-07-2013, 12:45 PM   #22
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Location: Western Oregon
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Re: anyone decline the PKU?

Originally Posted by Nerissa View Post
I work in the schools and have seen the results to a kid that didn't get tested and/or parents didn't follow the rules so to speak and it is sad.

I would do the test
yes yes yes.
I'm a special education teacher. I declined the eye goop, I declined a hospital bath. I understand declining the vitamin k shot. The heel prick was really uncomfortable for my first baby, and my second nursed right through it. But after seeing the results of a metabolic disorder, I personally wouldn't ever decline the pku. My student had mental retardation from the food she ate before they knew what was wrong. She then lived with a very limited diet for years. Eventually she had a liver transplant and can now eat normally, however the cognitive delay is for life.
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