Re: anyone decline the PKU?
So what if it's rare? does that help the family of a dead baby whose death could have been prevented?
Not all states test for that much, it's worth checking into what your state tests for and asking for expanded testing if not and knowing what is NOT normal for a newborn is useful.
Originally Posted by ktmelody
But the pku test involves over 30 endocrine, metobolic, hemoglobin and cystic fibrosis screenings. Not all are genetic.
It isnt just testing for pku any more (there may be states that dont include all the screenings but all states test for more than pku)
Rare also means not many docs know about the disorders, so if a baby shows signs often a doctor will miss it
IHA: books, fabric, lots of new baby clothes, toys
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