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Old 02-11-2013, 06:37 PM   #47
Join Date: Dec 2006
Posts: 3,492
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Re: anyone decline the PKU?

Originally Posted by JennTheMomma View Post
Um I was saying that the people I know who declined were tested to see if they carried the gene to pass on. If they didn't carry it then they didn't test for it since there wasn't a gene to pass to the baby. Since it's rare, they felt like it was better to just get tested instead of having baby tested.
well given there are so many other similar conditions, if they did that vs the baby be tested that is just plain stupid. Bad advice they were given and I hope no one reads that advice and does the same.

This link has newborn screening success stories, there are also many stories that didn't have a happy ending.
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