My dd was being followed by a ton of specialist and Drs too before her diagnosis.
Don't let them bully you into NOT being your child's advocate.
Have they done a ct scan?
Neuroblastoma is something that I would be concerned about.
Melanie-Mommy to my HERO Madeline Parker
1/15/07-8/23/13 Fight For Maddie
our "Bumble Bean" Benjamin Patrick
1/19/13 and our "Little Bit" Eliotte Claire