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Old 05-29-2006, 07:32 PM   #1
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Join Date: Apr 2006
Location: the Coastal Empire
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anyone with marfan's??

i have marfan's and we suspect that our 15 month old does too. i am wondering if anyone out there has it and can let me know what sort of follow up you did for both mama and baby after the initial flurry of appointments early on.
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