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Old 07-13-2009, 03:05 PM   #3

Formerly: Creatively Ewe~ DO NOT FSOT~ ADMIN
Join Date: Jan 2007
Posts: 1,523
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Re: Possible syndrome?

We have many "diagnosis" too that they keep telling me they think there is more going on, but do not know exactly what.

He has:
Mild dismorphic features, things like recessed hair line, white patches of hair in the front, the rest is brn.
Global Developmental Delays
Global Hypotonia
Pragmatic Speech Delay
Silent Seizures
Tongue Tied at birth
Macrocephaly with mild hydrocephaly
Hydrosplacia with a Chordae (fixxed)
Chronic HIGH fevers that seem to come and go in waves

Try not to get discouraged, its hard to not get all wrapped up in finding a name for it, when in reality it may not really change the approch we have.
Selling off my yarn stash!
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