She is always in pain =( - Cloth Diapers & Parenting Community

Bellamoon · 10-08-2011, 09:11 AM

My dd has an Eosinophilic disorder And subsequently is "allergic" to many foods, dairy, soy, corn, gluten, strawberries and cinnamon. She is on an elemental formula, Neocate Jr. No matter how hard I try to keep her food separate and safe for her, she is constantly complaining of an upset tummy and then bowel issues. My heart breaks for her every day, knowing that no matter what I do I can not eliminate cross contamination and keep her safe from the foods that she cannot tolerate.

This is more of just a vent, I really need to get this off my chest. I feel like a bad mom for not being able to control it all.

mekat · 10-08-2011, 10:11 AM

Keep trying to manage her issues but in the meantime to deal with the pain ask the pediatric gastroenterologist about Rx'ing liquid Karafate. It will coat her stomach completely and is safer then resorting to narcotic pain relief. Just be aware Karafate is good at coating everything even medicine so there needs to be a time buffer between giving other meds and Karafate other wise the other meds won't absorb. If you can't use Karafate our ped prescribed a moderate dose of Tylenol with Codeine. We give it very rarily (twice a month at tops) and rely mostly on Karafate but occasionally when Karafate can't be given or won't handle the type of pain I go for the heavier stuff. Of course, keep trying to address the cause just use these as a bit of a crutch to help her until her medical condition either get better or can be better managed. Pain can be managed even in the pediatric crowd. It doesn't have to destroy her quality of life.

Bellamoon · 10-08-2011, 10:43 AM

Thanks, I will call the GI on monday and see if they can get us in before our next scheduled appt.

mekat · 10-08-2011, 09:29 PM

I was giving my son his nightly med and realized I spelled Carafate wrong. It is spelled with a C not a K. Just wanted to correct my mistake so there wasn't any confusion.

lovelylaurie · 10-28-2011, 08:22 PM

Activated charcoal can be mixed into juice and helps absorb toxins to the body. They have even done preliminary testing with peanuts!

Also talk to a doctor or specialist about using acidophilus and aloe.

Cindydg · 02-04-2012, 06:53 PM

Just rereading this post and tips. My little guy was DX with food allergies and asthma at 18 months. Its been a couple of months but we are still working on making sure there is no cross contamination. Yikes, its hard. He also seems like he's in pain quite a bit. I have written down your suggestions in case I need them in the future. I think its going to be a long road for us.

10-08-2011, 09:11 AM	#1
Bellamoon Registered Users Join Date: May 2008 Location: State of confusion (thanks Army) Posts: 5,053 Ratings: 67 Feedback: 97% My Mood:	She is always in pain =( My dd has an Eosinophilic disorder And subsequently is "allergic" to many foods, dairy, soy, corn, gluten, strawberries and cinnamon. She is on an elemental formula, Neocate Jr. No matter how hard I try to keep her food separate and safe for her, she is constantly complaining of an upset tummy and then bowel issues. My heart breaks for her every day, knowing that no matter what I do I can not eliminate cross contamination and keep her safe from the foods that she cannot tolerate. This is more of just a vent, I really need to get this off my chest. I feel like a bad mom for not being able to control it all. __________________ Mama to N (8/02), L (12/06) and P (2/11) My blog

10-08-2011, 10:11 AM	#2
mekat Registered Users Join Date: Mar 2008 Posts: 2,021 Ratings: 2 Feedback: 100%	Re: She is always in pain =( Keep trying to manage her issues but in the meantime to deal with the pain ask the pediatric gastroenterologist about Rx'ing liquid Karafate. It will coat her stomach completely and is safer then resorting to narcotic pain relief. Just be aware Karafate is good at coating everything even medicine so there needs to be a time buffer between giving other meds and Karafate other wise the other meds won't absorb. If you can't use Karafate our ped prescribed a moderate dose of Tylenol with Codeine. We give it very rarily (twice a month at tops) and rely mostly on Karafate but occasionally when Karafate can't be given or won't handle the type of pain I go for the heavier stuff. Of course, keep trying to address the cause just use these as a bit of a crutch to help her until her medical condition either get better or can be better managed. Pain can be managed even in the pediatric crowd. It doesn't have to destroy her quality of life.

10-08-2011, 10:43 AM	#3
Bellamoon Registered Users Join Date: May 2008 Location: State of confusion (thanks Army) Posts: 5,053 Ratings: 67 Feedback: 97% My Mood:	Re: She is always in pain =( Thanks, I will call the GI on monday and see if they can get us in before our next scheduled appt. __________________ Mama to N (8/02), L (12/06) and P (2/11) My blog

10-08-2011, 09:29 PM	#4
mekat Registered Users Join Date: Mar 2008 Posts: 2,021 Ratings: 2 Feedback: 100%	Re: She is always in pain =( I was giving my son his nightly med and realized I spelled Carafate wrong. It is spelled with a C not a K. Just wanted to correct my mistake so there wasn't any confusion.

10-28-2011, 08:22 PM	#5
lovelylaurie Registered Users Join Date: Oct 2007 Location: Kitchener, Ontario CANADA Posts: 126 Ratings: 1 Feedback: 100%	Re: She is always in pain =( Activated charcoal can be mixed into juice and helps absorb toxins to the body. They have even done preliminary testing with peanuts! Also talk to a doctor or specialist about using acidophilus and aloe.