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Old 11-21-2011, 10:02 PM   #1
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Question What health issues does your LO face from being 'undercooked'?

I had a 34 weeker who only spent 3 days in NICU, but has since been admitted 4 times, had major surgery, has PT constantly, and ALWAYS has some health issue to overcome/deal with.

I was wondering what everyone else's story is.

DS born @ 34 weeks due to PPROM. It looked as though we got off lucky with no health issues other than severe Laryngomalacia. HAH! Then, we had to deal with episodes of him not being able to breathe (I told the pulmonologist time and time again that he was not having premature apnea....he was TRYING to breathe!) They didn't believe me, and treated him as if they were central episodes. His Ped thought it was the laryngomalacia causing it, but handed control over to the specialist. After several blue spells (we still don't know what/if any brain damage those spells did), they figured out he has severe GERD, and was aspirating. They did a nissen fundoplication on him and put in a G-tube. I HATE that tube. 5 days post op was the first staph infection, and he has constantly battled infection ever since.......OH! He gets it out next month!! *does a happy dance.* Also, we haven't declared him an asthma kid, yet.....but he is on Asthma meds, and without them he wheezes. I'm not facing that one, yet. ;-) Also, he has been 'sick' with some mystery illness for 2.5 weeks now. Fever off and on (3 days total out of the 2.5 weeks.) He has had severe diarrhea for the past 2 weeks (up to 30 nasty blowouts a day.) Anyway, I'm done venting.
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Old 11-23-2011, 12:02 AM   #2
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Re: What health issues does your LO face from being 'undercooked'?

Sorry your LO is ill, I hope he gets better soon!

DS was a 32-weeker. He needed surgery to repair his bilateral inguinal hernias when he was 5 months old...our pedi said these hernias are common in preemie boys.

We have been truly blessed...other than the hernia, nothing much else healthwise. They thought he was anemic for a while but it turns out that he actually has an inherited (from me) blood abnormality that mess up the test results when they check for anemia. He has been a late bloomer, even after adjusting for his prematurity...crawled at 11 months (chronological age), didn't walk til 19 months (c.a.), only has a few verbal words at 21 months (c.a.) but lots of signs and a good receptive vocabulary. Nothing the doctor is too concerned about at this point though.
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Old 11-23-2011, 12:52 AM   #3
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Re: What health issues does your LO face from being 'undercooked'?

I'm sorry you are going through this I think it really depends on the kid and initial complications. I have two preemies: one 34 weeks, left the hospital immediately w/out complications and one 26 weeker in the hospital for 12 weeks. So far I haven't seen *knock on wood* any long-lasting effects, other than possible sensory issues with the 34 weeker. Maybe some reading issues, but I don't really know at this point. Haven't seen much with my younger one.
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Old 11-23-2011, 01:04 AM   #4
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Re: What health issues does your LO face from being 'undercooked'?

My 25 weeker had reflux that has since resolved. Her only problem thus far has been feeding. She is 2.5 yrs. and is now a typical "picky eater". She was in feeding therapy for about a year for some texture issues, but that seems to have worked itself out. She may be a bit behind in gross motor, but nothing you would notice unless you were doing an evaluation. I feel incredibly blessed.
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Old 11-23-2011, 07:27 AM   #5
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Hugs OP! Outcome is so individual and multifactorial. It would make sense that more days in the belly would mean a healthier baby not always.

My 27 weekers had very different NICU stays but neither seen to have any major long lasting effects. At 13 mo they both are still on reflux meds and not even close to being on the growth chart but they have been meeting milestones by actual age (rolled at 5, crawled at 6.5, cruising since 11 mo). We have been sick like every stinking day since we turned 9 mo though. I mean multiple upper resp. infections, GI bugs, roseola, supposed CP (I think HFM), and multiple ear infections. I thought we would avoid this by not attending DC, church nursery, not licking shopping carts or high chairs but apparently not . What scares me are the things I can't see yet, the longterm neurodevelopmental stuff.

Op, maybe you are just using up all of you bad luck early ?
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Old 11-23-2011, 08:42 AM   #6
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Re: What health issues does your LO face from being 'undercooked'?

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Op, maybe you are just using up all of you bad luck early ?
:-) I Love it! Sorry to hear your little ones have had constant bugs, etc. Here's to your 27 weekers having NO unforseen neuro complications!!
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Old 11-23-2011, 06:49 PM   #7
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Re: What health issues does your LO face from being 'undercooked'?

My daughter was born at 32weeks 2days, at birth she needed CPAP for 4 hours and then a feeding tube for 2weeks, she was in a total of 21days. She had reflux as an infant but that seemed to go away by 1year corrected. She finally started sleeping thru the night about 4 months ago and had nighterrrors, they are much less frequent now (hopefully this stays that way). She has major seperation anxiety but is doing much better than a year ago. Mainly the concern is that she coughs and wheezes~being monitored for possible asthma but not diagnosed yet. She contantly gets a cough and/or chest infection. So she's on inhalers for the winter months to see if that helps.
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Old 11-25-2011, 07:54 PM   #8
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Re: What health issues does your LO face from being 'undercooked'?

Poor baby. What do you guys do when she gets her chest infections? (we found out yesterday he has his first pneumonia.)
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Old 11-28-2011, 04:32 AM   #9
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Re: What health issues does your LO face from being 'undercooked'?

Sometimes there;s not much I can do for her, lots of cuddles, keep a vaporizor going in her room, rub some natural stuff (similar to Vicks VaporRub but all natural, sorry cant recall the name or it) on her chest, thats about it. Just try to keep her comfortable, lots of fluids and rest. Its no fun when they are sick.
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Old 11-29-2011, 08:40 PM   #10
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Violets mom - where did y'all do feeding therapy??? My preemie who is almost 7 still has a lot of texture issues. MAinly with meat but he is super super picky Nd it concerns me.
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