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Old 09-13-2012, 11:55 PM   #1
court3189
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Any others here on DS with Noonan Syndrome?

With a prevalence up there with Down Syndrome, I've got to believe we're not the only one's here
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Old 09-17-2012, 12:19 PM   #2
l_Kimmie_l
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Re: Any others here on DS with Noonan Syndrome?

My BFF's son has it. It was a random mutation. I told her to join here as she knows no one else with a child with it. Her son goes to my son's school and is in his class. My boy has PDD-NOS.
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Old 09-18-2012, 10:35 PM   #3
court3189
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Re: Any others here on DS with Noonan Syndrome?

Thanks! If she wants to message or email me let me know! If she isn't aware of it-let her know there is a pretty active facebook group, the one titled 'Noonan Syndrome Family'. How old are both your boys?
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Old 09-19-2012, 07:45 AM   #4
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Re: Any others here on DS with Noonan Syndrome?

Quote:
Originally Posted by court3189 View Post
Thanks! If she wants to message or email me let me know! If she isn't aware of it-let her know there is a pretty active facebook group, the one titled 'Noonan Syndrome Family'. How old are both your boys?
I will, she does have facebook. I will have to tell her about the group. She feels so lonely at times. My boys are 15, 4, 3, and 5 months. Our 4 year olds are in the same class. My 3 year old is also close to her son. He is 4 too.
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Old 10-04-2012, 08:21 PM   #5
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Re: Any others here on DS with Noonan Syndrome?

I'm on here occasionally but you already know me via FB
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