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Old 09-06-2006, 08:48 AM   #1
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OCD and kids

We just finally made the connection yesterday with the help of DS's teacher that DS (age 5) has OCD tendancies. It should have been fairly obvious to us because DH has been diasnosed as borderline OCD, but its just never come up in a way that made it so obvious to us. We always just thought that was part of his personality. Now that its been pointed out to me, and proven by several things DS's teacher showed me yesterday, I need to know how to move forward.

Background: DS was evaluated at just before three because he was still nonverbal. We ran the ENTIRE gammut of tests, everything from audiology to autism and everything inbetween. He was simply diagnosed with a "global speech delay" and "generalized social anxiety." Which IMO are really vauge dx. We put him in a special ed class where he caught up wonderfully, and then mainstreamed him at the right time. He is extremely smart, reading unassisted, spelling words by sounding then out phonetically, adding and subtracting, etc. However, his social skills are still severely lacking. He does not interact with any of the kids in his 8 pupil class, spaces out during circle time, is extremely possesive with toys, etc.

I'm glad to finally have a name for some of these behaviours that DS is exhibiting (and has been most of his life.) I am wary of using the (IMO inadequate) school system to DX him again as I feel they will do the bare minimum to get by in helping him, and each step will be a huge fight. We have decided to pursue treatment privately. Now, how do I find a Doctor/therapist/treatment, etc for him? I dont know where to start looking or even what I am looking for! Child Psychologist? Behavioral modification?

Anyone been through this? I would love to hear from you.
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Old 09-06-2006, 11:40 AM   #2
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Re: OCD and kids

What are the OCD tendencies that the teacher pointed out?

If you pursue tx privately, you want a child psychologist preferrably by reference from a pediatrician or some other professional who you really, really trust. I cannot emphasize this enough. And be specific about a PSYCHOLOGIST rather than a PSYCHIATRIST. One is a PhD and one is an MD (Unless you luck up and find one with both). Not always, but usually, a psychologist is much more trained in behavior modification and psychological development and a psychiatrist uses more of a medical model, hence their ability to rx meds. In the event that you ever needed medical intervention (ex meds), I still encourage you to work with a psychologist and an MD in tandem.

I know that dx like global speech delays and generalized social anxiety can be very vague and scary. Rest assured that with tx speech delays are turned COMPLETELY around in the vast majority of children. And in regards to generalized social anxiety, we see a similar picture with children and adults provided they are tx properly, most respond very well. IF that is a correct dx, it is one that as he gets older, he will become better equipped at managing. And well-managed he may not be the biggest social butterfly, but he most likely won't be the biggest wall flower either.

By seeking intervention and being open and involved, you are giving him invaluable advantages. Make sure to stay educated yourself so that you can be critical (in a good way) of your healthcare.

Good luck, mama.
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Old 09-06-2006, 01:11 PM   #3
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Re: OCD and kids

My ds2 was in an early intervention program in our state. California may have one like it here: http://www.dds.ca.gov/EarlyStart/ESHome.cfm.

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Old 09-06-2006, 01:44 PM   #4
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Re: OCD and kids

Quote:
Originally Posted by sheandaru
My ds2 was in an early intervention program in our state. California may have one like it here: http://www.dds.ca.gov/EarlyStart/ESHome.cfm.

HTH.
Great reference, especially if one cannot afford to pay out of pocket.

Here in SC, we have Babynet, which serves children that age. Often times the therapists go to the child's home
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Old 09-06-2006, 02:12 PM   #5
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Re: OCD and kids

Thanks Wendy for all the valuable info. Im cutting and pasting here, but some of the things he does are:

Adam has always had these little quirks. Like I said I just thought they were part of who he was, but now thats its been pointed out to me, every single "quirk" is a complusive behaviour! He does things like: draws the same thing in his journal every day. At the art table, always chooses the same color paper (blue) and makes the SAME project. On the playground, uses the same blue block to pretend "camera," but always plays by himself. At library time, he choose the same book (blue cover) every day. At home, his toys have to be in a specific order. If you move them, he will put them right back ASAP. He will notice even if he didnt actually SEE you move them. He takes the same two toys to bed with him every night unless I force a different choice. He has listened to the same CD for bed every night for at least 3 years. He will not let you leave the house (not even to go out front to put the garbage out, etc) without giving you a kiss. If you dont, he loses his mind, and requires quite some time to "recover" from it. He is extremely possesive of toys (I assume because it disrupts his sense of order.)

Unfortunately, hes aged out of early intervention. Thats how we orginally got the speech and social dx. We had therapists coming to the home twice a week, he went to a special ed class for 8 mos, then we were told he no longer needed services (and at the time I agreed!) I feel good about going privately for now, and if we end up needing the school system again, its nice to know its there.



ETA: I have made an appt with our very trusted and always willing to work with us Ped for tomorrow night. I am hopeful he will be able to provide some references/referrals to someone he thinks would be a good match for our family.

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Old 09-06-2006, 04:48 PM   #6
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Re: OCD and kids

I forgot that the early interventions at home generally end @36 months.

The behaviors certainly seem consistent with OCD traits, which would not be too surprising since your DH has tendencies (heritability factor).

I am so glad you have someone you can really trust! You're being proactive and advocating for your child and the importance really cannot be overstated.

Even with the symptomology you have mentioned I think his prognosis is EXCELLENT with your love and support and proper intervention.

Please keep us up to date on how Adam is doing.
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