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Old 09-22-2008, 01:46 PM   #1
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Unhappy Update: #162 (Hugs to everyone) Bulging fluid at base of head/down syndrome?

Updated on post #73

Had my 13week appt. baby HR is good and he/she measures fine. But OB who is very experienced saw something abnormal on U/S as did I. It was like a extra bulging area towards the base of the head and it was pretty distict. She immediately asked me how old I was and I knew something was wrong.. like over 35 stuff you hear about. (I'm 33 BTW so close to 35). She told me I need to see a specialist ASAP at a genetic U/S place downtown. My appt isn't until Thursday though.

So here I am freaking out and not knowing what to expect. I asked if this was a possible viability issue and she said no... then mentioned Sara Palins son and how he is down syndrome and still fine. Guess this is a possible chromosome issue with fluid in the head and down syndrome?
She said she could be wrong and it might just be something on the placenta but I'm thinking its not good. As no matter how she moved that darn wand you could see the image linked to the head.

Can someone give me some insight on this early kind of diagnosis? It's going to make me nuts waiting until Thursday. Anyone know of someone who had a real scare during an inital U/S only to have it come out ok?

TIA! I don't think I can handle much more crying and nerves at this point. As of now I'm probably going to have to shut down my store again as I'm a mess and can't deal with work, 3 kids, and this kind of news.

Updated with U/S Photo's below from yesterdays appt.
1st is the original... 2nd shows areas circled that are abnormal, with 2nd photo I outlined babies head so you could tell what you were looking at.



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Old 09-22-2008, 01:53 PM   #2
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Re: Help needed! 13 week appt. today..bulging fluid at base of head/down syndrome?

Hugs, mama, I have no experience with this, but I wanted to respond. And I am over 35, will be 39 2 days after the baby is due and my grandmother was 38 when she had her 1 DS baby (out of 8 kids and had 2 more who were otherwise "perfect" after him), so, the concern is close to my heart.
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Old 09-29-2008, 07:50 PM   #3
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Re: Help needed! 13 week appt. today..bulging fluid at base of head/down syndrome?

I am so so sorry. You and your family will be in my prayers, of course.
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Old 09-22-2008, 01:56 PM   #4
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Re: Help needed! 13 week appt. today..bulging fluid at base of head/down syndrome?

I know sorta what you are going through, but not quite. I was told my test for down syndrome came back at a high risk positive. It ended up my dates were off which threw off the tests. It was confirmed later that it wasn't and I got into the u/s that same day to check my dates so I didn't have to wait. I did start bawling right away and DH was even really worried as well. It was a stressful day so I can only imagine waiting several days. Thursday will be here before you know it. I will keep you in my prayers and just hope that everything is ok. Once you hear from a specialist you will be more certain of what is to come. Just stay strong and Thursday will be here soon.
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Old 09-22-2008, 02:03 PM   #5
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Re: Help needed! 13 week appt. today..bulging fluid at base of head/down syndrome?

it sounds like hyrdocephalous... we were told this lil one would have it... we had many hours of genetic counseling and a few high risk ultrasounds... we were first diagnosed at 15 weeks but at 17 weeks they said she was just fine... absolutely perfect!! but if it is hydrocephalous there are many options! you can drain the fluid and you can put in a shunt! pm me if you want to mama! i was just going through this !!!
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Old 09-22-2008, 02:09 PM   #6
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Re: Help needed! 13 week appt. today..bulging fluid at base of head/down syndrome?

Quote:
Originally Posted by asteiner18 View Post
it sounds like hyrdocephalous... we were told this lil one would have it... we had many hours of genetic counseling and a few high risk ultrasounds... we were first diagnosed at 15 weeks but at 17 weeks they said she was just fine... absolutely perfect!! but if it is hydrocephalous there are many options! you can drain the fluid and you can put in a shunt! pm me if you want to mama! i was just going through this !!!

How did they first come to say your LO would have it? Was it through an U/S image or blood test? We have the genetic counseling an hour before the appointment. I'm just curious about what changed for you between 15 and 17 weeks.. did the bulge disappear? Was it wrong initally? etc.
Thanks mama... I'd love to have some hope the Dr. is wrong.
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Old 09-22-2008, 02:22 PM   #7
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Re: Help needed! 13 week appt. today..bulging fluid at base of head/down syndrome?

I don't have experience with this specifically, but I do have experience with being given test results and scared to death, only to have further testing reveal absolutely nothing was wrong. Hang in there, of course it's scary, but it could be nothing!
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Old 09-22-2008, 02:37 PM   #8
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Re: Help needed! 13 week appt. today..bulging fluid at base of head/down syndrome?

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Old 09-22-2008, 02:36 PM   #9
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Re: Help needed! 13 week appt. today..bulging fluid at base of head/down syndrome?

Quote:
Originally Posted by Sew Crafty Baby View Post
How did they first come to say your LO would have it? Was it through an U/S image or blood test? We have the genetic counseling an hour before the appointment. I'm just curious about what changed for you between 15 and 17 weeks.. did the bulge disappear? Was it wrong initally? etc.
Thanks mama... I'd love to have some hope the Dr. is wrong.
it was through an US at the ER... but we were misdiagnosed.... i never saw anything wrong at our US and at the high risk clinic they said they never could have gotten the measurements they did... i will pray yours is a misdaignosis as well!!
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Old 09-22-2008, 02:46 PM   #10
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Re: Help needed! 13 week appt. today..bulging fluid at base of head/down syndrome?

What's interesting is when I look up U/S pics online of fluid in the brain, the U/S's always show these black spaces within the normal brain area that are the extra fluid.
But this wasn't the case with mine. It looked like the head itself was totally misshaped in the back head/neck area. You could see a normal head but then an extra something sticking out from the back.. does that make sense?
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