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Old 10-12-2011, 01:03 PM   #11
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Re: Anyone here with OCD child?

Thanks for sharing Jamie, Katie, and Stephanie!

Jamie...how exhausting as mom you must be at times!!! (like how you feel??) There are very very similar traits in the 'lack of ' understanding humor you describe in your Ds and how my DS is. You said your boy is older right? I'm wanting to remember that at least.

Some days something is emotionally not right but I don't feel is the ocd kicking in (the dr said he's slightly depressive/bit of anxiety there)...last week we were in the store grabbing a few items we needed for DS2 daycare, we grabbed a bag of suckers they request (the kids)...we're walking around and DS busts out crying (Incredibly sad). at that point I want to start crying but don't because I need to keep my composure for him. I lean down to his level and put my arm around him and ask '' baby what is wrong''...and he just looks blankly ''I don't know'' "why are you crying, did something make you upset?" all he could do is just say he didn't know. I don't know if he just didn't want to tell me or what.

Yesterday at the speech office, he happened to see his last name on the side of his chart. It ends in two L's. In written manuscript, it is kind of curvy. He started crying, tears in his eyes, because he thought someone spelled his name with two U's instead. THe speech therapist tried to tell him that the lady just has a 'curvy' writing but she promised it was two L's. He was so distraught over it.

Stephanie...good thinking with the lotion!

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Old 10-12-2011, 03:46 PM   #12
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Re: Anyone here with OCD child?

My oldest son (8 years old) has been diagnosed PDD-NOS/OCD/SPD---whew.

It's getting better as he gets older. But the hardest thing is alot of his ocd centers around the toilet. He is terrified of pooping in a toilet---period. But at the same time spends endless amounts of time in there. For no rational reason that we can figure out or he can articulate to us. It causes a whole host of problems--as you can imagine.


He also is extremely picky about food. He feels that anything that is not in his food choices are going to choke him or make him sick. He relieves the anxiety when it pops up by repeating certain behaviours over and over. And he also relieves anxiety by hyper focusing---he'll pick a point on the wall, in a book, a picture maybe and just stare stare stare at it---basically putting to memory every detail. And I'll have to call him back to the social situation or task at hand. It actually makes him tenser to do that---when he hyperfocuses he looks as if he might explode.

A lot of this is sensory related as well---because he has a very sensitive gag reflex and doesn't tolerate even the most normal of smells.

My son also is very sensitive to any thing he perceives as criticism---and can react to it with tears or an angry outburst.

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Old 10-13-2011, 08:43 AM   #13
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Re: Anyone here with OCD child?

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Originally Posted by walking-iris View Post
My oldest son (8 years old) has been diagnosed PDD-NOS/OCD/SPD---whew.

It's getting better as he gets older. But the hardest thing is alot of his ocd centers around the toilet. He is terrified of pooping in a toilet---period. But at the same time spends endless amounts of time in there. For no rational reason that we can figure out or he can articulate to us. It causes a whole host of problems--as you can imagine.


He also is extremely picky about food. He feels that anything that is not in his food choices are going to choke him or make him sick. He relieves the anxiety when it pops up by repeating certain behaviours over and over. And he also relieves anxiety by hyper focusing---he'll pick a point on the wall, in a book, a picture maybe and just stare stare stare at it---basically putting to memory every detail. And I'll have to call him back to the social situation or task at hand. It actually makes him tenser to do that---when he hyperfocuses he looks as if he might explode.

A lot of this is sensory related as well---because he has a very sensitive gag reflex and doesn't tolerate even the most normal of smells.

My son also is very sensitive to any thing he perceives as criticism---and can react to it with tears or an angry outburst.
His pickiness with food seems to 'phase' into different things..and I sometimes can't tell if it's just a L thing (his name) or if it's his OCD...leaning more towards the ocd bc he talks about wanting his squash in little pieces because he's scared it's gonna choke him. "hello...squash is soft it's not going to choke anyone" "well this boy on the bus got choked by chocolate'' I'm thinking, "by the time you take one bite of squash it's pretty much pureed almost, the likelihood of it choking you is slim" but he's so worried about it and he asks can other things be cut small. But Doesn't make sense cuz he'll turn right around and put a big chunk of chicken in his mouth and chew it perfectly. I mean I'd be fine if he outright said I don't like squash - but he doesn't do that

Yes I can imagine... once in a while we get an angry outburst, the majority of ours is reactions of sobbing with tears
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Old 10-15-2011, 05:36 PM   #14
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Re: Anyone here with OCD child?

Well at least he tries!!! Mine runs away in a total flight or fight reaction if we so much as say "would you like to try a bite of xyz"

But he eats hard things like Granola bars etc. I think he seeks sensory information in the mouth quite a bit. Only drinks with a straw and chews them up---ruins them---pretty quickly.

It goes in phases around here too---some weeks it's lovely. Others I want to run away! kwim?
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Old 11-20-2012, 06:06 PM   #15
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Re: Anyone here with OCD child?

I know this is an old thread but my dd has just been diagnosed with OCD and GAD as well and I am going through so many of the things posted by others here. My dd is 8 and we will be medicating her in a few weeks which has me really worried but her dr is worried if we don't.
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Old 11-22-2012, 03:20 AM   #16
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Re: Anyone here with OCD child?

Hi Crystal

My oldest ds was diagnosed with anxiety leading to ocd when he was about 6 1/2 yrs old. He's now 7 1/2. He has a lot of symptoms that all the op's listed, they wax and wane a bit though, sometimes he drives me round the bend and other times he's just fine, with only minor things going on that you wouldn't pick as unusual unless you knew.

He always seems to have had some sensory issues, right from when he was a baby, nothing debilitating though.
Now, he CANNOT STAND the sound or people eating, chewing, or heaven forbid, talking with their mouth full or chewing with their mouth open. He is seriously the manners police at our table. He must tell me if he ever catches sight randomly of someone doing the above, could be anywhere, and he will change seats in a restaurant so he can't see the drooly baby at the next table mushing up it's food and dribbling on everything. However, I am generally sympathetic to this, as it's an easy behaviour/obsession/aversion to accomodate.
And I tell him it's ok to be grossed out about it, that some people are just super-sensitive to the sounds of people chewing and to get out of eye shot if someone's being 'offensive' to his sensibilities and to not sit right up close to other people who are eating.

I can tell when his anxiety is stronger, he has trouble getting to sleep, tiny little worries obsess him (like something that happened in day care when he was 4, so 3 1/2 yrs ago) and he constantly asks me if something 'is alright', something he saw or something he touched or something he said etc. And the teache notices it too, he's more high strung and touchy or grouchy.

At diagnosis point though he couldn't deal with school at all and would end up in the vice principals office to calm down. And it would take 10 mins to walk to the VP's office because he couldn't step on cracks, spots, or any sort of mark at all on the ground. The school could tell something was up, it wasn't him just misbehaving.
We have done some cognitive behavioural therapy, I don't beleive it was a great success to be honset. He has matured somewhat, he has a fabulous teacher this year and he seems to be learning to 'manage' it a little better.

We had a completely crappy year last year, so I don't know how much that played into what was going on with him. Although, from as young as about 2, he did weird little things that I called his ocd things, so it wasn't all from what happened last year.

I was told by a specialist pediatrician that medication is often not all that successful and that behaviour therapy is more effective but people seem to have different experiences with that. If my ds hadn't shown any improvemnt on his own and had kept getting worse, I would have investigated medication eventually.





Phew, I've written a somewhat rambly novel , hope you get something figured out with your dd.
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Old 11-22-2012, 05:35 PM   #17
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Re: Anyone here with OCD child?

thank you! With my dd she has so many worries about so many things and she is constantly asking me if it is ok or if she needs to wash her hands, or pick up the piece of hair she dropped or if it's ok she licked her lip etc. She has started taking baths again as showers were taking too much hot water so her baths are now 1-2 hours long and she is constantly worried that she is using too much shampoo or not enough soap. If the cloth doesn't glide easily across her whole body then she thinks she doesn't have enough and will start to cry. She doesn't feel as though she can rinse the conditioner out of her hair and so she cries. Brushing her teeth and going pee take 30-60 minutes as well because she has a fear of missing a tooth so we start getting ready for bed at suppertime. Just the past couple of weeks she has started worrying about wiping herself after peeing and she can easily use up half a roll of toilet paper and still come out asking if I think she did a good enough job because she thinks she should wipe more. Luckily she does mostly take our word for it when we say that it's fine and she can be easily talked down but I don't even know how many times in a day she asks for reassurance. She can't eat any type of food without washing her hands right after (even if she eats with a fork and doesn't touch the food) but thankfully she doesn't scrub and scrub for a long time, it's more frequency then duration in that case. She's not worried about germs (that's what she says) but she worries about getting dirt/food on other things even if it was a piece of bread which has no residue.

Her mind is busy going all day thinking about how someone at school looked at her or said something and what could they have meant by that. She does well at school but is distracted more and more lately by the thoughts that take over and make her worry. She cried for three days because she bumped into someone at school and didn't say sorry. It took three days before she could put into words what was bothering her and nothing I said made her feel better until I told her that she could go find the person in the morning and say sorry if it would make her feel better. She did go and hunt down that person and they had no idea what she was talking about. It festered in her little head as she lived it over and over again and it was not even a big deal.

She second guesses every single thing she does and she apologizes constantly. Her self-esteem is non-existent and she even admitted to the dr that if she accidentally hurts someone else then she does it to herself as punishment. That killed me to hear that! We have never physically punished our kids and it kills me how hard she is on herself especially for such minor things. She used to be very popular at school and is now down to one friend because the kids at school were actually annoyed by her apologizing all the time for everything. Not only does she say sorry for everything but she also has to hear you acknowledge and accept her apology or she will keep saying it. It is really really sad.
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Old 11-22-2012, 05:38 PM   #18
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Re: Anyone here with OCD child?

Oh and she has also developed some very real phobias. Dogs terrify her and she goes completely hysterical around even the friendliest dog (to the point of peeing her pants 3 times lately). Even if she hears a dog bark somewhere where she is completely safe and away from dogs she starts shaking and cant think about anything else. Public washrooms with auto flush toilets are another one as is the thought of throwing up.
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Old 11-28-2012, 03:55 AM   #19
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Re: Anyone here with OCD child?

Mine also does the "is that ok?" or more often now "but that's ok isn't it? Yes it is." he will answer himself if I ignore it a bit and also because sometimes I stop him and reason with him, go through exactly what it is he's asking about and make it clear that it IS ok, ...."yes, in the story the boy did tear the head off the doll, but, it is only a story so not real at all, and really, unless it was your own special doll....and you don't actually have any dolls anyway, do you, then it would still be okay. Etc etc etc.

He also goes through stages of telling me EVERYTHING. Mummy, my fingernail touched that book/I saw that guy eat with his mouth open/I just picked a big booger out of my nose/that person looked at me/my foot touched that chair. This sends me round the bend, partly because I only have hearing in one ear, so if someone is talking to me I need to give them my full attention. And to stop whatever I am doing to hear him just give me this running commentary drives me to the edge very quickly.
I sat down with him once and talked about how we all have our own 'radio' in our heads, made up of our thoughts and that I have my own radio running in my head and that when he tells me all the tiny minutiae that are in HIS head, it's like I am hearing two radios and it just overwhelms me and I can't think.
I think it becomes a bit of a habit sometimes and he needs to actually think about it and I also don't think it hurts for him to see the effect his behavior has on others. He does understand this and tries to lessen it.

Once, I made up a chart and every time he 'kept something in his head' he would tell me and I would put a tick on his chart.


He is a hand washer but not an obsessive one, I have always tried to be so careful about the hand washing thing because he never liked to be grubby and at one point was washing his hands often enough that his skin was drying out, so I pointed that out to him and told him why it was dry and explained that our skin doesn't like/need to be wet often and that soap takes the moisture out of the skin etc. That some germs are good for our immune system etc and there are some times that it is necessary to wash hands with soap....coming home from school, after being in public places and playgrounds etc and sometimes just a rinse with water is ok....if you're hands are sticky after eating an apple etc. He is definitely very particular about hand washing/rinsing now....always rinses after eating and will not touch anything until he does and if we're out and he's had a snack, he will get us to tip his drink bottle over his hands to 'wash' them and will get agitated if he can't do this.

As I wrote earlier, he was diagnosed with anxiety, that LEADS him to 'do' ocd type behaviors, rather than ocd itself. And reading your daughter's story and comparing it to my son's, I can see the difference.

I can say he is so much better than at this point last year. We are in the final month of our school year and last year at this stage it was such a huge effort to do anything/go anywhere/talk about anything/even put him to bed. We'd had a stillbirth earlier in the year, my dh had broken his shoulder in a bike accident and needed surgery, it was my ds's first year at school and his teacher had changed half way through the year to a very new inexperienced teacher and I cannot remember what else. Oh a student loan needed paying off in full, to the tune of $16 000. It was pretty awful year all round, so I was stressed to almost breaking point.
Just curious, have any big life events precipitated this? My ds's seemed to come to a head after everything that happened last year, although he always had his ocd quirks.

This year has been much calmer over all, ds has a fabulous teacher, he's just a bit older, he's learning karate and while he still has moments and things he MUST do, it's not debilitating or isolating for him. Just ritualistic maybe, rather than ocd. He always checks the front of his pants to see if they're on the right way, turns the waistband down to see if he can see the label that should be at the back. Always, even if he knows for sure he put them on right. Does this with tops too.

Crystal, I hope you can get your daughter to a better place, it is truly awful to watch your kid battle with themselves in this way.
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Old 01-12-2013, 07:11 PM   #20
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Re: Anyone here with OCD child?

I just wanted to check in and update that my dd is on medication now for the past month and a half and it has worked WONDERS! She is on prozac and it has improved life so so much. I have also notices though that she has gained a lot of weight on it (which I was not told was a side effect) and now in my own head I struggle with that but she is so much happier now. She has actually gone almost a week without mentioning dogs even once (which was an all day every day completely irrational fear/phobia). Her hand washing has improved but is still more often then it should be. She doesn't meltdown every day anymore and has only had 2 "episodes" in the past 4 weeks.

I am so relieved to have gotten her help. It had gotten so bad and was a battle every day. I do worry now that she will keep gaining weight and will be made fun of for that but as long as it doesn't get too out of control then it is still worth it to have her happy again.
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