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Old 07-20-2006, 09:11 PM   #11
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Re: Doctor said dd's hips are not lined up.

You can do an ultrasound up to 6 months (and a little beyond but after 6 months, an xray is better). After 6 months, they do xrays. I suggested an ultrasound cuz your DD is right at 6 months. My dd had a U/S at 5 months and an xray at six. I was told by the U/S tech that she was fine but I wanted a second opinion with a specialist(something I would recommend for you to do also-if they say she is fine). She just turned 1 and had an xray 2 days ago to make sure that she is still fine-her folds are still off and she still clicks. He said the xray looked good but the tech would have to read it. Haven't heard yet but I am not concerned.
For your DD, since she was C-section and had blue feet, they should have done an U/S at birth...I can't believe they missed that! At birth, she would have been put in a Pavlik Harness and the success rate with that is about 95%. Now that she is "older", it really does make it a little more complicated-not to scare you but that's how it is. The success rate for a "complete" recovery with a brace goes down as the baby gets older. With the pavlik(for babies under 6 months), you can change a dipe easy, take it off occassionally for baths, etc. With a spica cast, it doesn't come off. You have to put a dipe in the cast, then line the hole with pantyliners (yes, really...it keeps poop and urine off the cast) and then put another dipe on the outside of the cast. Heard it is annoying. Hopefully she won't have to have that. They *might* try the pavlik on her first for a few weeks to see if the hip angles improve with it. My guess would be that they use a spica if she has HD. There is a "new" brace that they can use instead of a spica which is plastic and removeable but it's not popular in the states yet-they use them in Australia. It's the Rhino Cruiser. There are a few others that aren't used a lot either and I would check into those. Check this out: http://www.hipkidsaustralia.org/b_rc.php

Oh, and your DD is in no pain. In fact, babies that don't get diagnosed with this can walk with HD without pain. The braces won't be painful either but I am sure she will be annoyed with them after a while. Keep me updated and I will pray for her. If she does have it, do a LOT of research so you can decide what is best for your DD. Just cuz a doc recommends a certain treatment, it doesn't mean that it's the best thing to do(some docs swear by a certain brace whereas another might recommend surgery or something. every doc has different opinions and training). I guess my best advise it to get a second opinion no matter what!

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Old 07-20-2006, 09:23 PM   #12
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Re: Doctor said dd's hips are not lined up.

Not a lot of advice, but my son was born with bilateral clubbed feet. He's been through months of casting and will have a small surgery next week, and eventually we'll move on to a brace.

SO, if you need someone to talk to send me a PM! I know it sounds horrible (and believe me, none of it is fun!) but kids are resiliant little things! And the faster you get it all taken care of, the easier it will be!

to you and prayers that your dd will get the best care possible!
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Old 07-21-2006, 12:49 PM   #13
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Re: Doctor said dd's hips are not lined up.

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Originally Posted by love2bmom2chris
For your DD, since she was C-section and had blue feet, they should have done an U/S at birth...I can't believe they missed that!
I asked DH if they did anything like this, and turns out they did ultrasound her hips in the NICU but they looked good. DH said they told him it was routine for all preemie (she wasn't really a preemie IMO, but they considered her one because she was only 36 weeks) c-section babies, so didn't think it was worth mentioning. Guess it just slipped his mind until I asked. I had an emergency C-section with complications and then was very sick after DD's birth with rebound Pre-E, so I just do not remember much about our time in the hospital and wasn't able to be there for any of dd's examinations. Thanks again for all the info. We are still waiting on the doc to call back .
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Old 07-21-2006, 03:31 PM   #14
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Re: Doctor said dd's hips are not lined up.

Audrianna wears a hip abductor brace while she sleeps it helps give her muscles in her thighs a good stretch . Cause she has high tone CP the more she grows the tighter her muscles get which can cause her hips to pop out it is nothing u have to crank i can look up the link for you
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Old 07-21-2006, 03:36 PM   #15
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Re: Doctor said dd's hips are not lined up.

If her U/S at birth was fine, she might be OK but I don't know. My DD's Doc just called today to tell us that her hips are fine. They still pop and her cheeks are uneven. The poppong can be other things like my DD's-nothing needs to be done and she will outgrow the popping. Keep us posted!
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Old 07-24-2006, 10:09 AM   #16
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Re: Doctor said dd's hips are not lined up.

Hear anything?
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Old 07-24-2006, 05:30 PM   #17
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Re: *Update* Doctor said dd's hips are not lined up.

Well, the doc finally called and they said dd's hips look good. They apologized for the delay, but told me that she went ahead and had an orthopedic doc look at the films to be sure. DD still is a little crooked but they said it isn't any thing to worry about that they will just watch closely until she out grows it.

love2bmom2chris - glad to here you dd is ok. They want to do the same with my dd and repeat the x ray around a year and then every year after that until dd is no longer crooked or popping.
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Old 07-24-2006, 09:52 PM   #18
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Re: *Update* Doctor said dd's hips are not lined up.

AWESOME! I was worried about your DD cuz you said that the doc could dislocate it completely. That almost always means HD. With my DD, her hips were not dislocatable but they popped. Doesn't the wait just kill you? I had to wait a few days after her Ultrasound and I was so worried. Glad to know she is fine! If you are at all skeptical about the diagnosis, get a second opinion. I did and I don't regret it...it gave me peace of mind!
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Old 07-24-2006, 10:56 PM   #19
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Re: *Update* Doctor said dd's hips are not lined up.

I sooo need to reply to this!!! This was me when I was little - The uneven butt was the tip off for my doc.

The DR caught it before 2 months, BUT what they had my mom do - was double diaper me, which pushes the hip into place and do exercises at every diaper change. I would think you might want to ask about this - I have heard a lot about double diapering girls with these issues.

SOOO much less invasive and certainly will not hurt her.

Limit time (if you do any at all) in an exercauser, backpack or those jump up things...
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