Reply Hey Mom! Learn more about the Gerber Life Insurance Grow-Up Plan!
 
Thread Tools Display Modes
Old 08-18-2006, 06:05 AM   #11
jennyofthemoon's Avatar
jennyofthemoon
Registered Users
seller
 
Join Date: Apr 2006
Posts: 1,008
Re: Other Sensory Integration mom's here?

The school things isn't an issue..we hs'd for K, but she REALLY wanted to go to school for Grade 1, so we tried it. She didn't like it, but I made her do the whole year, as she committed ot doing. She is back happily homeschooling with the rest of the family now

I'm about 20 minutes west of Worcester, so not too far at all ):

Advertisement

__________________
mama to A, J L and S
jennyofthemoon is offline   Reply With Quote
Old 08-18-2006, 06:17 AM   #12
Luvmybabies's Avatar
Luvmybabies
My two cuties :)
sitesupporter
seller
 
Join Date: Apr 2006
Posts: 14,039
Re: Other Sensory Integration mom's here?

I'm happy to see some other moms here I don't have much support IRL with this, so its nice to see others that I can chat with.
My own mom asked me what I had done to make him this way - hurt my feelings beyond belief. Its like they just don't want to take the time to understand what Corey's issues are.
My MIL is trying to understand, bless her heart - but still isn't so helpful. I know that she isn't purposely being that way though.

Corey has a lot of GI issues and food allergies on top of this so its difficult around here. He is on a speciality medical food because for the most part he just won't eat any solids. If we do get some solids in him they can't be wet or slimy - just looking at those foods makes him gag. Somedays he'll eat a bit of the Just Tomatoes dried fruits, then he won't eat for days. We are working on the GI portion of all this, trying to get that under control so that we have a better idea of what foods we can offer.
Appointments with him are impossible, he just doesn't do well out of his own environment. Trying to go to an appt with a 4yo that doesn't want to be (why should she want to if her brother doesn't!) and a screaming baby isn't a lot of fun. I have to call the GI today and I'm dreading it, another appt.

Sorry to babble.

The OT from Early Intervention is wonderful, I have high hopes that she'll be able to help Corey out.
__________________
Karen - WAHM to Chloe 5/02 & Corey 4/05
Feedback Old DS Check out my Tie-Dye at Splash Coloria
Luvmybabies is offline   Reply With Quote
Old 08-18-2006, 06:32 AM   #13
Willys Woolies's Avatar
Willys Woolies
Registered Users
 
Join Date: Apr 2006
Posts: 729
Re: Other Sensory Integration mom's here?

Jenny that's great that you're homeschooling! I wish I could do that, but, unfortunately I work too much!!! You should continue exposing her to outside things though too as much as possible so she doesn't become too "sheltered" which may work against her. I'm not sure how far Worcester is from here, but I think a few people who work here are from there so it can't be too far! Do you ever go to the mall over there in Attleboro???

Karen I completely understand about taking them to appts...Will is the same. I had to take him to a children's eye specialist because he was tested at daycare by the state and didn't pass....the eye specialist could only confirm that the state's tests were correct and that he does need glasses, but couldn't get a good enough read on him becasue he was fighting with the doctor so bad! I was horrified...it was almost like this tiny 16 month old boy thought he was fighting for his life! It's not easy!!! Will is very limited on what foods he will eat too. The OT recommends we try to offer him a variety, which I always do, but he keeps going back to his "regulars". So, we try to offer slight variations of the regulars. For instance, he will eat mac and cheese, but only the tubes or spirals. For the longest time it was only the tubes....we eventually got him to accept the spirals. Now we are trying the Batman ones....they are all the same, but again, they are just a tad different. The OT doesn't want him to be stuck in a rut where he will only accept things a certain way, so we continue to push it. I mix a few of the Batmans in with his tubes....lol. He eats bread, so I try hiding stuff inside of it. I will sneak in a tiny thin slice of ham and then squish it together super tight so he won't find it. He usually does, but we try. It's a challenge, it truly is!

I always blame myself for my DS's SID issues. If only I didn't work and I could be with him all the time....he seems to do so much better with 1:1 attention which he doesn't get at daycare. You know....we all go through it. It's not our fault, really, it's not, but we tend to find a reason for it, when there really isn't one. Try not to place blame. It really could be something much worse, believe me. If this is the only issue, I thank God it's not something worse!!! Try to remain postive. I know it's hard, believe me, I have weeks where I'm in total worry and tears...we all do it. You will have good weeks and bad weeks. It's always 1 step forward and 2 steps back....I know that now and I'm always ready for it!
__________________
Linda ~ Mama to 7 & wife to Bill ~ Co-owner of The Cloth Diaper Connection
Old DS Feedback: http://www.kikifoxito.com/ds/forum/i...?topic=11375.0
I'm going to ride my bike 150 miles in just two days! To read the story: http://main.nationalmssociety.org/si...1&s_tafId=8376
Willys Woolies is offline   Reply With Quote
Old 08-18-2006, 01:55 PM   #14
SandyG's Avatar
SandyG
Moderator at heart, but no longer moderator
The best way I know of to win an argument is to start by being in the right
seller
 
Join Date: Apr 2006
Location: Yuma AZ
Posts: 13,777
Re: Other Sensory Integration mom's here?

Karen i really hope the OT will h elp corey out sweeite !!
pls keep us updated!!
does the OT come once a week??? hope so
__________________
SAHM to David (5) ; wife to my sweetie. Praise the Lord
sorry Im not around as I use to be
Old DS Feedback DP Feedback www.americansolutions.com--take action NOW!!
SandyG is offline   Reply With Quote
Old 08-18-2006, 06:11 PM   #15
JustAugust's Avatar
JustAugust
Registered Users
seller
 
Join Date: Apr 2006
Location: Cloud 9
Posts: 12,049
My Mood:
Re: Other Sensory Integration mom's here?

My brother (he'll be 9 in November) has it pretty bad. He's always gotten really upset about loud noises, can't wear (or even touch) wool or flannel or he totally freaks out, can't eat a ton of things. My mom's made the eating thing worse because she never offered him much because of it. So literally all he eats is chicken nuggets, zebra cakes, pizza, and tacos. It's terrible. In all honesty, he can't eat bananas. He throws up every single time. He won't eat ANY fruits and veggies actually. He can eat some, just doesn't. But most do make him throw up because of the texture.

I think *I* have it to a degree. I've always been hyper-sensative to noise, textures in clothes and food. I can't eat yogurt. I try, but it makes me gag. I love the taste, just can't handle the slimyness, I guess. Same thing with jello, pudding, oatmeal... I've never been diagnosed or anything though. Just me thoughts.
__________________
Tiffany, Mama to the incredible JM (3.25.06) , NC (7.28.10) and EH (9.23.13)
We don't vaccinate, we kept our sons intact, we use cloth diapers, we co-sleep, we extended RF, we breastfeed, but we watch too much tv and I totally dig plastic! Everyone has their issues, lol.
JustAugust is offline   Reply With Quote
Old 08-19-2006, 04:57 PM   #16
janelyb's Avatar
janelyb
Registered Users
 
Join Date: Apr 2006
Location: Northern California
Posts: 318
My Mood:
Re: Other Sensory Integration mom's here?

I have 2 SPD kids one offically diagnosed and the other undiagnosed. There is an awesome yahoogroup that many of us with Sensory kids go to to chat and for advise. Linda belongs to it also.....
http://health.groups.yahoo.com/group...egrationgroup/

While you are waiting for OT...my suggestion would be to read the Out of Sync child has fun and do some of those activities. Also a gym class that has lots of jumping,running,balancing and other sensory input would be great too.

Janel
__________________
Janel, mamma to: Tyler (6/03) and Isabella (6/95),ttc #3
janelyb is offline   Reply With Quote
Old 08-21-2006, 06:22 AM   #17
Willys Woolies's Avatar
Willys Woolies
Registered Users
 
Join Date: Apr 2006
Posts: 729
Re: Other Sensory Integration mom's here?

Hi Janel!!!
Yes, I belong to that group also! I find I read it mostly, but when I do post looking for advice, every one there is super nice and full of different ideas of things to try! Even though I don't post a lot, they treat me like everyone else when I need advice which is super nice! It's truly a great bunch of moms all trying so hard to live with SID! It's great sometimes to read about people who are going through the same things I am and can offer a different perspective and different ideas of ways to cope! It's very helpful to hook up with people who have "been there, done that"!
__________________
Linda ~ Mama to 7 & wife to Bill ~ Co-owner of The Cloth Diaper Connection
Old DS Feedback: http://www.kikifoxito.com/ds/forum/i...?topic=11375.0
I'm going to ride my bike 150 miles in just two days! To read the story: http://main.nationalmssociety.org/si...1&s_tafId=8376
Willys Woolies is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Copyright 2005 - 2014 Escalate Media. All Rights Reserved.