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Old 04-08-2008, 08:48 PM   #1
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Angelmans syndrome?

Any Angel mamas in here????

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Old 04-12-2008, 05:06 PM   #2
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Re: Angelmans syndrome?

Hi there, I am new to DS, but wanted to say that my DD is being tested for this soon per her Nero. request. So far everything else has come back negative....I will let you know if she does end up being diagnosed with this. She fits some of the symptoms....at 3.5 non verbal and not walking without a pediatric walker.
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Old 04-12-2008, 05:14 PM   #3
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Re: Angelmans syndrome?

My nephew was diagnosed at age 2. One of the youngest to be diagnosed. I am always on the lookout for other moms of Angels, because there are so few. My sister in law is very active in the Angelmans Syndrome Foundation. Her litle boy is 4 now and he started walking a few months ago. He doesn't speak at all,except maybe a few words, but his motor skills are getting really good. ANd he is the cutest little guy to be around.
We plan to participate in next years walk, it is going to be in the Spring of 09 in Disneyworld. Let me know how your little girls diagnoses comes out. There are lots of new support groups and get togethers popping up all over, I can direct you to a few people that have been through all of this.
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Old 04-13-2008, 12:53 PM   #4
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Re: Angelmans syndrome?

Thank you so much! I just adore DD, she is the love of my life. She is progressing so well with all her therapy. We haven't had the testing done but will soon.

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