Reply Hey Mom! Learn more about the Gerber Life Insurance Grow-Up Plan!
Thread Tools Display Modes
Old 04-26-2008, 09:37 PM   #11
Delaney21's Avatar
Registered Users
Join Date: Jun 2006
Location: Michigan
Posts: 377
My Mood:
Re: Anyone else here have a g-tube dependent child?

Mitchell, 17 months, has eosinophilic gastroenteritis, so he is essentially allergic to all food. He has the physical ability to eat and drink, but refuses to drink enough quantity to sustain him and we haven't found any foods he's not allergic to. He'll drink maybe 4-5 ounces a day by mouth, and he eats ice every day to try to keep his eating skills up.

Mitchell received a NG tube when he was 12 months old and we upgraded to the g-tube 6 weeks later (January 08). For us, the g-tube has been a blessing. Prior to it, DS was slowly starving to death and now he is happy, thriving and healthy. He has gained 7 pounds in 4 months!

He gets 4 oz bolus feeds every 4 hours during the day and he's on a 10 hour continuous feed overnight. We have the Zevex Infinity pump with the super mini backpack and he loves to wear it around so it has made traveling and outings a lot easier!

Planning ahead to make sure you have enough formula when you leave the house in case you get caught in traffic, caught at the doc's office, or for when he's hospitalized and the hospital runs out of his formula. He was BF prior to the tube, so I never had to worry about having enough available.

Being the crazy mom that doesn't feed her kid

We don't have to worry about him throwing food around the kitchen when he's eating like most toddlers He's easy to clean up after.

I don't have to worry about getting him to take crappy tasting meds because his tubey doesn't have taste buds.


A Glimpse into Their Lives is now a Glimpse into Our Life.
Support Hope. Support APFED.
DS - 11/20/2006, B/G TWINS due May 2011
Delaney21 is offline   Reply With Quote
Old 04-28-2008, 02:09 AM   #12
lissa2061's Avatar
Knitting fool
Join Date: Jan 2007
Location: Kansas!
Posts: 88
My Mood:
Re: Anyone else here have a g-tube dependent child?

My son Evan had an NG tube for 14 months and a G-tube for a year. His eating issues were a result of his heart defect. He just did not have the strength to eat for long enough to get a full meal. He had pretty small stomach capacity, so that was our biggest hurtle in getting him 100% oral fed. Now that he has had his surgeries and his heart is working a lot better it is nice to see him chunking up.
Mommy to Evan 4 (heart defect and stroke survivor) and Harry 3 (cute as a bug and into everything) knocked up with #3 due in May Adventures of an Awesome (Sometimes) Mother
lissa2061 is offline   Reply With Quote
Old 04-28-2008, 10:25 PM   #13
Join Date: Jun 2007
Location: Surprise AZ
Posts: 1,033
My Mood:
Re: Anyone else here have a g-tube dependent child?

My youngest DD Brooke 15m has a Mic-key button and has had since she was 3 1/2 m old due to sever reflux and failure to thrive. We did cont night feed for about 6 m and recently we were able to stop that. I know what you are dealing with is hard and scary. Your little man will be in my prayers as will you and your family. I wish a speedy recovery and Im here if you need to talk or have any questions!
Brooke is totally eating by mouth now, Praise God for small steps! We use the button to burp her, she had a fundo done as well. She has a seizure disorder and Sesory progression disorder!
Gpd gave you a very special little guy! He picked you to care for this little man, he knows you can handle it! He is going to be just fine!
rwooley is offline   Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Copyright 2005 - 2014 Escalate Media. All Rights Reserved.