Diaper Swappers

geckoed · 11-17-2006, 02:38 PM

seems like I post more about going IN to the hospital than coming OUT. I get a little afraid of "jinxing it" and, when I tell relatives good news they act like its not really good

Anyway. I have good things to post. I'm hoping you guys can keep in mind "its all relative" and *just* be happy.
Lochlan has a serious immune deficiency, and about a dozen other issues as well. He's always sick, he's often hospitalized, he has delays and so on. There are a LOT of mommas on here just recapping

Anyway. In the last 3 weeks (he gets infusions every 3 weeks to try to make/keep him healthy) he hasn't had to stay overnight at the hospital at ALL

AND, we had a chest xray because his pneumonia isn't clearing (he got it in Sept). He still has pneumonia, and some scarring etc, BUT his xray is FINALLY not getting worse

AND his labs came back. This won't make sense to most of you, but just go with it ok? His IGg was 120 pre-infusion, and the goal was to have it around 800 3 weeks later. It was 90. But this infusion his predraw showed 340!! Now, its still a far cry from 800, I know- but its a LOT higher than it was and means we are getting closer to finding his right dose

AND his stool sample showed only trace amounts of c-diff at LAST! So WOOHOOOO we're fixing up his gut too!

AND his ear infections are clearing, still fluid and redness, but less pus and nastiness.
AND the early intervention team came to evaluate him. I don't have the report yet, but he's "doing MUCH better than expected" in everything but speech. AND at 19 months he said "mom", at 20 months "dad" was added. This month he started to point at things when asked (a few pictures in books, and pics of family on the wall) and also added "Nah-Noe" for Connor (biggest brother) and "oooo" for Trew (other brother) and "go" (for go

)and also added some new sounds (he had vowels and growls until 19 months, then only B and D sounds until this month) now he has N, G, B, W

All that news has come in in the last week or so.
I don't mean to sound boasty or braggy, just wanted to share our UPS too

janendragon · 11-17-2006, 04:54 PM

thats great to hear!!

9800Emily · 11-17-2006, 06:04 PM

Thats great.

I'm glad you little guy is getting better, sounds like he has been through a lot for being so young.

kezoo · 11-18-2006, 06:23 PM

Yay! It must be great to have some good things to cheer about!

sesa70 · 11-20-2006, 07:46 AM

So glad to hear the good news! I love the happy stuff too

reborin · 11-26-2006, 09:51 AM

Woot!!! That's all really positive for you guys! Awesome!!! I hope it keeps in that direction!

One of my guys first words was GO too. SO cute.

amielia80 · 11-26-2006, 11:09 AM

wow that is great news!!! I am so happy for you and your little one. My son has been very sick too for variuos reasons and he went through EI and now has a diagnosis os autism and ADHD. My younger son is also in EI for speech delay.I know where you are coming form. Keep your head high and thoughts good. Always smile and your little one will do just fine!!!! I know it is hard to do at times, but sometimes it is all you can do is to think positive. I am always here if you need to talk....
Have you tested his hearing? You said he had lots of ear infections, sometimes that can lead to speech delay. My DS started speaking the words he could speak clearer after he had tubes put in (after 2 years of chronic ear infections) just a thought.

11-17-2006, 02:38 PM	#1
geckoed Registered Users Join Date: Apr 2006 Location: Michigan Posts: 1,301 Ratings: 22 Feedback: 100% My Mood:	Only good things seems like I post more about going IN to the hospital than coming OUT. I get a little afraid of "jinxing it" and, when I tell relatives good news they act like its not really good Anyway. I have good things to post. I'm hoping you guys can keep in mind "its all relative" and just be happy. Lochlan has a serious immune deficiency, and about a dozen other issues as well. He's always sick, he's often hospitalized, he has delays and so on. There are a LOT of mommas on here just recapping Anyway. In the last 3 weeks (he gets infusions every 3 weeks to try to make/keep him healthy) he hasn't had to stay overnight at the hospital at ALL AND, we had a chest xray because his pneumonia isn't clearing (he got it in Sept). He still has pneumonia, and some scarring etc, BUT his xray is FINALLY not getting worse AND his labs came back. This won't make sense to most of you, but just go with it ok? His IGg was 120 pre-infusion, and the goal was to have it around 800 3 weeks later. It was 90. But this infusion his predraw showed 340!! Now, its still a far cry from 800, I know- but its a LOT higher than it was and means we are getting closer to finding his right dose AND his stool sample showed only trace amounts of c-diff at LAST! So WOOHOOOO we're fixing up his gut too! AND his ear infections are clearing, still fluid and redness, but less pus and nastiness. AND the early intervention team came to evaluate him. I don't have the report yet, but he's "doing MUCH better than expected" in everything but speech. AND at 19 months he said "mom", at 20 months "dad" was added. This month he started to point at things when asked (a few pictures in books, and pics of family on the wall) and also added "Nah-Noe" for Connor (biggest brother) and "oooo" for Trew (other brother) and "go" (for go )and also added some new sounds (he had vowels and growls until 19 months, then only B and D sounds until this month) now he has N, G, B, W All that news has come in in the last week or so. I don't mean to sound boasty or braggy, just wanted to share our UPS too __________________ Kim, mom of 5

11-17-2006, 04:54 PM	#2
janendragon Registered Users Join Date: Aug 2006 Posts: 2,832 Ratings: 31 Feedback: 100% My Mood:	Re: Only good things thats great to hear!! __________________ SAHM to my crazy toddler

11-17-2006, 06:04 PM	#3
9800Emily Registered Users Join Date: Apr 2006 Posts: 1,025 Ratings: 104 Feedback: 100%	Re: Only good things Thats great. I'm glad you little guy is getting better, sounds like he has been through a lot for being so young. __________________ Emily Wife to Matt and mama to Abby 1/06 & Lilly 4/09

11-18-2006, 06:23 PM	#4
kezoo Registered Users Join Date: May 2006 Location: Kalamazoo, MI Posts: 8,027 Ratings: 92 Feedback: 100% My Mood:	Re: Only good things Yay! It must be great to have some good things to cheer about! __________________ Kerry Mama to Gavin (3/26/03) , Claire (6/14/05) and Oliver (hb 4/24/08) ISO: nothing! \| IHA: small fitteds, small & med wool

11-20-2006, 07:46 AM	#5
sesa70 Registered Users Join Date: Apr 2006 Location: Chicago suburbs Posts: 2,584 Ratings: 103 Feedback: 100% My Mood:	Re: Only good things So glad to hear the good news! I love the happy stuff too __________________ Theresa mom to special needs 13 yr old princess 7 yr old little miss sunshine and our long awaited flower baby!