Reply Hey Mom! Learn more about the Gerber Life Insurance Grow-Up Plan!
Thread Tools Display Modes
Old 09-21-2008, 09:13 PM   #11
Registered Users
Join Date: Mar 2007
Location: Oregon
Posts: 211
My Mood:
Re: Feeding Tubes

My son got a g-tube at 17 months old. He had fallen from the 75th to the
10th percentile for weight over the course of 4 months because he started having trouble eating & frequent vomiting episodes after his first brain surgery (for chiari malformation).

In addition to weight loss, a red flag for needing a g-tube is if your child isn't making developmental progress. I'll be honest & say I don't know how that works for kids with CP, but for my son, when his development had pretty much stalled, the gastroenterologist said it was time to put in the tube because there was concern that Joshua's brain wasn't getting "fed" properly.

I'd recommend talking with your daughter's gastroenterologist about your concerns. Good luck!


Kate, mom to 7
My blog
Joshua's caringbridge page
momto3g4b is offline   Reply With Quote
Old 09-25-2008, 08:37 PM   #12
kaydonette's Avatar
Registered Users
Join Date: Jul 2008
Location: Ft. Leonard Wood
Posts: 148
My Mood:
Re: Feeding Tubes (No Feeding tube!!!!)

We went to the doc today and Catie does not need a feeding tube yet!!!!! Catie's developmental ped thinks we just need to revamp her diet, So we are going to see a nutritionist. We will also be adding a scoop of formula to her pediasure to add calories.
Kayla SAHM to Catie 9/17/05 and Chambers 10/17/07 , and a proud to Grady
kaydonette is offline   Reply With Quote
Old 03-04-2009, 09:51 PM   #13
dreamingkristin's Avatar
Registered Users
Join Date: May 2008
Location: Houston, TX
Posts: 2,368
My Mood:
Re: Feeding Tubes

Originally Posted by Butterfly Designs View Post
Were dealing with this now pretty sure at our next GI appt they are going to talk about a feeding tube...dd is below the 3rd percentlie and keeps not gaining...SHe has EE though and mulitple food allergies. She takes Neocate jr formula (supposed to be at least 30 oz a good day is 25oz) some rice, apples, pears, potatoes and chicken..She cannot eat enough to actually sustain her right now and she keeps loosing. Im actually at peace with the Tube option as i have done everything i can possibly do for the last 10 months to get her to gain. But i cannot force the formula or food. Good luck no matter if you do or do not get one!

I was just wondering what was up with your DD?? Mine also has EE and its not a very common thing... You get a lot more Neocate into your DD then I can manage with mine.. she was drinking about 6-8 oz on a good day but has more foods than yours.. but she doens't really eat much at all or drink much either... we jsut got fininished with a 3 month trial of an NG tube and it really did wonders - she gained 3 1/2 lbs in 3 months... more than she gained in the past year almost! But now that we don't have it we are pretty much right back to where she was.. she is eating more.. but still not enough.. and refuses any of the formulas...
Just looking to connect ot another momma who understands!
Kristin - SAHM (former teacher) to I- (9), K- (7)and A- (5)and a E- (2)
dreamingkristin is offline   Reply With Quote
Old 04-16-2009, 06:07 AM   #14
indysteffanie's Avatar
Registered Users
Join Date: Apr 2006
Location: Some where out there....
Posts: 1,218
My Mood:
Re: Feeding Tubes

we had ours placed a month ago (anderson is 15 months today)

he weighed 17lbs at 12 months (january) but only gained about 6 lbs the 8 months prior to that.

he now has had the button for about a month, and weights almost 19lbs.

Steffanie: momma to Brennan(13) Dillon (7) with cf , Ashlyn (6) , TJ (4) and Anderson(1) , born at 29 weeks
indysteffanie is offline   Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Copyright 2005 - 2018 VIX-WomensForum LLC. All Rights Reserved.