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Old 09-29-2009, 01:22 PM   #1
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Anyone have a child with sensory processing disorder?

DS hasn't been diagnosed, but I've recently come across SPD through online research, and it seems like my 2 year old fits a lot of the symptoms. If he does have this, what do I do about it? I'm thinking about making him a doctor's appointment just to be sure. Just wondering if I'm alone here on this one...

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Old 09-29-2009, 04:35 PM   #2
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Re: Anyone have a child with sensory processing disorder?

DD has it. She was diagnosed unofficially by a physical therapist who she was seeing for toe walking, and then I called Early Intervention, who has been awesome. I would definitely contact your local EI team. The initial evaluation is free, and they come to your home to do it. Parents can self-refer. EI only works til kids are 3, so I would do it soon.

For what its worth, my ped was pretty worthless when it came to this stuff. She just told me that DD would get better with time, and referred us to an orthopedic surgeon for the toe walking. He then advocated surgery (which she didn't need and I refused) and put her in AFOs for it, which I don't think did a bit of good and cost us $800, plus a lot of specialists copays. It wasn't til I advocated for PT, who was wonderful, that we really started to understand.

I would definitely read "The Out of Sync Child." It is the SPD bible!
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Old 09-29-2009, 06:00 PM   #3
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Re: Anyone have a child with sensory processing disorder?

My daughter has a sensory processing disorder too! As the pp mentioned, my daughter was diagnosed by a P/T as well...She also has a developmental ped and she agrees with the P/T.

All I can say, is that do not let your sons doctor push your concerns aside. I let my daughters doctor play the "lets wait and see" game and I waited too long. It caused her to fall further behind (she has developmental delays) and it will now take me a while to get her caught up.

Just do what you think is right...If you feel that something is not right, let the doctor know that. Start the early intervention (as the pp mentioned) and ask for a referral to see an occupational therapist to be evaluated...(my daughter has an P/T for low muscle tone and dev delays and is going to start seeing an O/T for the oral motor and sensory stuff). HTH and good luck!
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Old 09-29-2009, 09:44 PM   #4
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Re: Anyone have a child with sensory processing disorder?

One of my twins has it. It's more a dyspraxia related one that makes him have more difficulties talking and other physical things. My ped referred us to Birth-3 because the other twin was reading aloud the alphabet poster at the office but couldn't actually say the letters. He got speech therapy and the other twin was evaluated and needed occupational therapy on top of that.

The OT told me not to put too much concern into what I read online. Usually people are wrong when they say that but she really ended up being right. Every kid really is different and my Seth has really connected with the therapy. I receive it free through the state and they come to our house. Very nice. Once we started dealing with his sensory integration, he stopped having these intense internal melt-downs. They were/are like temper tantrums that are completely inside him and not expressed. I actually prefer the regular kind to that! He scarcely does them now because we have learned how to give him extra reassurances through the day and feelings of safety.

He is starting to talk now and finds his voice more and more every day. (His brother is talking pretty well now). The laundry list that could scare any normal parent ended up not being ours. For example, SI kids typically have an awful time writing letters and are dismal at it in school. Well, after therapy started, he began writing with his water brush on our garage and can write most the alphabet. So you see every kid really has his or her own unique way of dealing with SI. And it's also very common. It's estimated to be as many as 1 out of 5 kids.
I just think that's wonderful that you are sensitive enough to see a potential issue. I had no idea and just felt bad that he was so emotionally fragile. Your baby is very lucky to have you, Mama!
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Old 09-29-2009, 10:03 PM   #5
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Re: Anyone have a child with sensory processing disorder?

my son hasn't been diagnosed but he does have some texture issues. I found it started when I began feeding him wheat products, and has improved since taking him off wheat and dairy. HTH
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