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Old 03-22-2013, 09:55 PM   #1
naynaygoesrawr's Avatar
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Join Date: Sep 2008
Location: pittsburgh
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Ccam and bronchopulmonary sequestration

Has anyone been diagnosed with this, who also has a success story?:[ I went for a follow up ultrasound for a Cpc and that disappeared now there is a mass near the lungs which is one of the above. I met with a genetic counselor and am going back every two weeks to be monitored and to further talk to a specialist, as well as meeting with a pediatric surgeon. I feel traumatized, and while it could be worse this is treatable
"There's no use going back to yesterday, I was a different person then."
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