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Old 07-09-2010, 02:16 PM   #11
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Re: Any other babies with helmets from plagiocephaly and torticollis?

DS1 had tort but we caught it in enough time that he didn't require a helmet for his flat spot. DS2 had tort as well and he was borderline for a helmet. I pushed and pushed for it but the ped refused to refer him. Now his ears are significantly offset and he has a huge flat spot at the top of the back of his head. It makes it impossible to shave his head now. We're hoping he outgrows it still, since he's only 2.5, but his ears are still going to be off.
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Old 07-09-2010, 02:58 PM   #12
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Re: Any other babies with helmets from plagiocephaly and torticollis?

Ktmo - How long did your DD need to wear the helmet?
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Old 07-09-2010, 03:37 PM   #13
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Re: Any other babies with helmets from plagiocephaly and torticollis?

Thanks for this post as we went to a neurosurgen as my son had a skull fracture at birth and his head was completely flat then fracture side filled in and the other side till a month ago was 100% flat - it looked funny so we went in for a referral (which was a nightmare as we are military insurance and they messed it all up but I booked the appt anyway) and neurosurgen said don't do a thing...he talked was very brief, said my son was cute and its just cosmetic (it is filling in more the past two weeks - he said to work on the sleep position but my son is MY son and has a mind of his own). But, why he didn't recommend it based on what you all are saying based on your kids needs makes 100% sense.

There are a bunch of things about the helmets, styles, etc. that I read - we had a friend use one and she said the child got used to it, it wasn't a big deal and helped.
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Old 07-09-2010, 04:03 PM   #14
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Re: Any other babies with helmets from plagiocephaly and torticollis?

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Ktmo - How long did your DD need to wear the helmet?
DD got her helmet at the end of Sept and she wore it until just before Christmas. She was outgrowing it at that time and could have used another one, but we opted not to get another one. We had seen tremendous improvement with the one and she was within typical range that we decided against it.

My ped did not recommend it, but did write us a referral. He thought she would do fine without it, but I really wanted to try it.
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Old 07-10-2010, 10:28 AM   #15
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Re: Any other babies with helmets from plagiocephaly and torticollis?

Though we decided against the helmet, I NEVER heard anything about helmets connected with autism or sensory disorders. You do what you think is right for your adorable little man, and no matter what you choose, it will all turn our ok in the end.

And just so you know, I don't think his plagio is noticeable from the photo you posted, so if you ultimately decide against doing the helmet, I think he'll be fine.

Oh, and one other thing another Mama on this board mentioned to me when I was debating about a helmet for our son: someone mentioned that it might be more difficult to fit him for sports helmets later in life.
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Old 05-25-2011, 11:35 AM   #16
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Re: Any other babies with helmets from plagiocephaly and torticollis?

subbing for later reading! thank you!
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Old 07-12-2011, 08:45 PM   #17
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Re: Any other babies with helmets from plagiocephaly and torticollis?

We just got the go ahead from our ped to get a consult for a helmet. DS has tort and IMO Brachycephaly. I'm leaning towards getting the helmet, but DH is apprehensive. I just don't want to regret it later when there is nothing we can do about it. I am worried about how DS will adjust to wearing/sleeping with it. Anyone have any trouble nursing with kiddos wearing helmets?
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Old 07-14-2011, 12:16 AM   #18
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Old 07-14-2011, 06:56 AM   #19
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Re: Any other babies with helmets from plagiocephaly and torticollis?

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Originally Posted by mommygreenex2 View Post
We just got the go ahead from our ped to get a consult for a helmet. DS has tort and IMO Brachycephaly. I'm leaning towards getting the helmet, but DH is apprehensive. I just don't want to regret it later when there is nothing we can do about it. I am worried about how DS will adjust to wearing/sleeping with it. Anyone have any trouble nursing with kiddos wearing helmets?
I felt the same way as you - I didn't want to regret not getting the helmet. I figured it couldn't hurt and I wanted to know that I tried everything. I am really glad that we did it. My DH had the same apprehensions.

It has been awhile, but I must of have been nursing when DD was in her helmet. I don't remember any problems. She didn't have any troubles adjusting to the helmet. It never impacted her sleeping/napping. Although, she was an easy baby and slept all the time.
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Old 07-14-2011, 07:01 AM   #20
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Re: Any other babies with helmets from plagiocephaly and torticollis?

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Subscribing. Memphis has torticollis, but nobody has mentioned any helmets. At what age do they normally do that?
I think the younger they are the better. Their heads stop growing so quickly after a year, so ideally they want to do it before then. The helmet is to correct the head shape, flats spots. You may not experience any of this. If you notice any flat spots you might want to talk to the doctor.
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