Diaper Swappers

ejbaemommy · 11-03-2010, 09:53 AM

any other tubie moms out there? my little guy is 11 months old and just got his Gtube switched to a GJtube.

Shaunam · 11-03-2010, 11:22 AM

DD has a GJ as well, though we might be going to TPN and just keeping the tube for meds.

luvsviola · 11-03-2010, 03:05 PM

DFS has a G-J after 9 months of G and vomitting 10+ times every day. We got it in July. He also has a catheter bag on the G side constantly draining his stomach fluids.

He's 19 months old and 28 pounds now.

melilo · 11-03-2010, 03:27 PM

Kind of piggy-backing here, but I'm curious.

I have a family member who is tube fed and is 7 years old. Is it possible he'll ever eat by mouth? He has no issues with his mouth or anything, I believe it's more psychological now. I know that he used to eat baby food, but many surgeries had him in and out of the hossy, and now he will only lick things.

mekat · 11-03-2010, 04:57 PM

We have been tube feeding for 6 years. When he is healthy usually things are on an even keel but we have just started our round of winter illnesses and he has already lost 3lbs from vomiting/illness and I have a ped saying one thing about his weight & the GI saying another. I am getting frustrated with all the he said and she said stuff and am thinking of getting a second opinion.

*knock on wood* We have never had to resort to j-feeds yet but I never know where we are going to end up with his health constantly seesawing back and forth. When he is doing well he does really well but when he is sick it can get serious quickly.

melilo - They can learn to eat later in life but even if it is just "behavioral" it still a very difficult and complex process. You can't even begin to imagine all the problems a parent might run into; some of them are medical, some sensory, some are actually about learning. How do you teach a child to swallow that has never swallowed or his muscles have forgotten how? It isn't easy and it doesn't happen overnight and if he has other health issues it is possible that a feeding program may not even take him. Basically it isn't impossible in most cases but it isn't easy by any stretch of the imagination either.

Shaunam · 11-03-2010, 05:43 PM

Quote:

Originally Posted by melilo

Kind of piggy-backing here, but I'm curious.

I have a family member who is tube fed and is 7 years old. Is it possible he'll ever eat by mouth? He has no issues with his mouth or anything, I believe it's more psychological now. I know that he used to eat baby food, but many surgeries had him in and out of the hossy, and now he will only lick things.

It *really* depends on the kid and what the issues are. Lots of kids wean off their tube, particularly if it's not a physical issue. Some kids have it for life. In the end though, tube feeding isn't that huge of a deal, especially if the child is otherwise healthy. I've met healthy kids who went to college with theirs and it was no big deal. They can feed themselves just fine and have friends that accept them for who they are.

ejbaemommy · 11-10-2010, 07:06 AM

Glad there are other tubie moms out there! Eli has a GJ tube. We had a G since 2 months old, and it was switched to a GJ a week or so ago. Eli has full GI motility, esophagus, gastric, and intestines. Among tons of other health issues.

LovnMyBoys · 11-16-2010, 08:01 PM

My 3 yo ds has a g-tube as well.

NitaE · 11-19-2010, 12:51 PM

My DS has an NG tube.

Tammy and Parker · 11-21-2010, 08:43 PM

Yup. G-tube here. We do a homemade blenderized formula during the day and Complete at night.

11-03-2010, 09:53 AM	#1
ejbaemommy Registered Users Join Date: Nov 2010 Location: Wichita, KS Posts: 45 Ratings: 3 Feedback: 100% My Mood:	any tubie moms out there? any other tubie moms out there? my little guy is 11 months old and just got his Gtube switched to a GJtube.

11-03-2010, 11:22 AM	#2
Shaunam Registered Users Join Date: Mar 2008 Posts: 2,451 Ratings: 1 Feedback: 100%	Re: any tubie moms out there? DD has a GJ as well, though we might be going to TPN and just keeping the tube for meds. __________________ Shauna, mom to Adrian, 8 and Charlie, 5!

11-03-2010, 03:05 PM	#3
luvsviola Registered Users Join Date: Dec 2006 Location: Central Indiana Posts: 15,189 Ratings: 115 Feedback: 100% My Mood:	Re: any tubie moms out there? DFS has a G-J after 9 months of G and vomitting 10+ times every day. We got it in July. He also has a catheter bag on the G side constantly draining his stomach fluids. He's 19 months old and 28 pounds now. __________________ Kristen Mommy to Abigail ~1/24/07 and Kendall~3/17/2011 and FINALLY adoptive mama to LEDGER~4/4/09!!!--G-J tube, asthma, oral aversion, reflux, SPD, drug exposure, and still searching for a diagnosis of the rest... Ask me about extended rear facing!

11-03-2010, 03:27 PM	#4
melilo Registered Users Join Date: Mar 2010 Location: NE Ohio Posts: 674 Ratings: 8 Feedback: 100% My Mood:	Re: any tubie moms out there? Kind of piggy-backing here, but I'm curious. I have a family member who is tube fed and is 7 years old. Is it possible he'll ever eat by mouth? He has no issues with his mouth or anything, I believe it's more psychological now. I know that he used to eat baby food, but many surgeries had him in and out of the hossy, and now he will only lick things. __________________ The world would be so boring if everyone were the same... Rubber City Doula You Deserve A Doula! DONA Trained Birth Doula

11-03-2010, 04:57 PM	#5
mekat Registered Users Join Date: Mar 2008 Posts: 1,613 Ratings: 2 Feedback: 100%	Re: any tubie moms out there? We have been tube feeding for 6 years. When he is healthy usually things are on an even keel but we have just started our round of winter illnesses and he has already lost 3lbs from vomiting/illness and I have a ped saying one thing about his weight & the GI saying another. I am getting frustrated with all the he said and she said stuff and am thinking of getting a second opinion. knock on wood We have never had to resort to j-feeds yet but I never know where we are going to end up with his health constantly seesawing back and forth. When he is doing well he does really well but when he is sick it can get serious quickly. melilo - They can learn to eat later in life but even if it is just "behavioral" it still a very difficult and complex process. You can't even begin to imagine all the problems a parent might run into; some of them are medical, some sensory, some are actually about learning. How do you teach a child to swallow that has never swallowed or his muscles have forgotten how? It isn't easy and it doesn't happen overnight and if he has other health issues it is possible that a feeding program may not even take him. Basically it isn't impossible in most cases but it isn't easy by any stretch of the imagination either.