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Old 03-28-2007, 06:21 PM   #1
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Unhappy Prayers & PT for DD!

Well our DD had 2 breakthrough seizures today.

Her meds were working, bad side effects but still working, these were her first seizures in a month or so.

DH called her Ped Neuro today to chat with him about it and he wants to see us in a couple weeks.

He said the words I have been dreading since the diagnosis of Epilepsy, she might have to have brain surgery to try to figure out whats going on.



I REALLY hope we get to the Children's Hospital and he has changed his mind or come up with some other idea.

I'm going to fight to try the Ketogenic Diet even though it's a nightmare in itself but IMO MUCH better than surgery.

So prayers and good thoughts for NO surgery would be GREAT Mamas!

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Old 03-28-2007, 06:22 PM   #2
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Re: Prayers & PT for DD!

Praying for your DD.
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Old 03-28-2007, 06:27 PM   #3
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Re: Prayers & PT for DD!



I am praying too mama!!!

my oldest has seizures too that are thankfully controlled with meds.
praying your DD can get hers under control too!!
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Old 03-28-2007, 06:34 PM   #4
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Re: Prayers & PT for DD!

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Old 03-28-2007, 06:37 PM   #5
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Re: Prayers & PT for DD!

I'm so sorry that you and your DD are dealing with this. I want you to know I will be praying to God for your DD to get threw this hard and long process. On of my nieces had bad seizures and was one a ton of meds. they too tried the Ketogenic Diet. This did not work for her, But I have herd of it having huge sucess rates. My niece ended up in the O.R. They removed three noncancerus tumors from her right side. She has had no issues from the operation, nor has she had any siezures. I HOPE and PRAY that your sweet little girl does not have to go into the O.R. I encourage you to try the Ketogenic Diet. And I hope that one day she will grow out of her seizures.. As may teen girls do! God Bless you and yours. Nikki
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Old 03-28-2007, 06:37 PM   #6
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Re: Prayers & PT for DD!

I am sorry to hear about your LO, I hope she gets better and doesnt need surgery.
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Old 03-28-2007, 06:39 PM   #7
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Re: Prayers & PT for DD!

Your DD & Family are in our prayers
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Old 03-28-2007, 06:44 PM   #8
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Re: Prayers & PT for DD!

Hugs and Prayers for you.
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Old 03-28-2007, 06:48 PM   #9
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Re: Prayers & PT for DD!

Thanks everyone.

And thanks so much Nikki for the encouraging information. I'm so sorry your niece had to go through the OR experience but I'm so happy her seizures are no more.

I am definately going to fight for the Ketogenic Diet I too have heard goo things about it. I would rather try that first THEN if it doesn't work think about surgery.

I still have hope that she will grow out of it. Fingers crossed. So many children do.
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Old 03-28-2007, 06:51 PM   #10
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Re: Prayers & PT for DD!



Thoughts and prayers with you and your family.
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