Re: Genetic Testing and Ins??
A genetic diagnosis cannot stop you from getting health insurance; the companies cannot deny you. However, your child may not ever be able to get life insurance. That isn't covered under the GINA law.
Also, I'm really familiar with Fragile X. That condition doesn't cause clefts so it might not be the best choice of testing. Also ask your geneticist or the genetic counselor he works with to write you a letter of medical necessity. Basically, they can say that your child needs this test and get it preauthorized so you won't have to pay for it.
The amount of therapies shouild be based on your child's needs as determined by their evaluation. A genetic diagnosis will not help you get any additional therapies. That's been my experience at least (I work in genetics).