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Old 05-10-2012, 09:47 PM   #11
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Re: Tentative diagnosis: Vein of Galen

sending hugs to you, mama!

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Old 05-10-2012, 10:30 PM   #12
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Re: Tentative diagnosis: Vein of Galen

praying for you. Tonight I am praying for comfort, peace and loads of wisdom! And wise council! And the ability to rest and sleep without fear.
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Old 05-10-2012, 11:46 PM   #13
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Re: Tentative diagnosis: Vein of Galen

Thanks ladies for any advice and prayers. I forgot to even mention I also found out I have gestational diabetes. I don't really even know what to do in the midst of everything else that is going on. I have an apt for the next wed. Oh what I wouldn't give for healthy pregnancies and healthy babies.
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Old 05-11-2012, 12:10 AM   #14
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DDC but I work at Boston children's. Call the program I'm sure they take Medicaid and there are lots of programs for families in need. We just treated a girl for months who had Hawaii Medicaid. You may want to start with the advanced fetal care center where they coordinate the prenatal diagnosis with afterbirth care.
I know it's overwhelming but take it one step at a time. Good luck!!
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Old 05-11-2012, 06:32 AM   #15
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Wow look at that!!!! Prayers are already working mama!!!!!
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Old 05-11-2012, 12:56 PM   #16
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Re: Tentative diagnosis: Vein of Galen

Wow yes, how awesome to have someone from BC on DS! Prayers here, mama!
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Old 05-11-2012, 03:40 PM   #17
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Re: Tentative diagnosis: Vein of Galen

Prayers coming mama!
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Old 05-11-2012, 06:44 PM   #18
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Originally Posted by Ryder
DDC but I work at Boston children's. Call the program I'm sure they take Medicaid and there are lots of programs for families in need. We just treated a girl for months who had Hawaii Medicaid. You may want to start with the advanced fetal care center where they coordinate the prenatal diagnosis with afterbirth care.
I know it's overwhelming but take it one step at a time. Good luck!!
Is there a place for her family to stay that would not put a strain on their finances? Like a Ronald MC Donald house?
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Old 05-11-2012, 07:07 PM   #19
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Re: Tentative diagnosis: Vein of Galen

Thanks everyone I have been doing hours of research. Boston Children's is still a possibility but there is a world renowned specialist in New York City that we may peruse. We have found Ronald McDonald houses in both locations along with some other charitable homes that may be able to help with a place to stay while we are there. We are looking into private insurance and all that it entails. It is just so confusing because private insurance considers my pregnancy a pre existing condition. We need to ensure I will be covered for the pregnancy and than that we are covered after the baby is born. DH is definitely working on figuring all of that out.

I just can't wait until Monday when we figure out more information about what my doctors are thinking right now......
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Old 05-12-2012, 04:41 PM   #20
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Re: Tentative diagnosis: Vein of Galen

Praying or you. God is still in the business of miracles and I'll be lifting you and your sweet babe up to Him.
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