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Old 05-27-2012, 08:25 PM   #31
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Re: Tentative diagnosis: Vein of Galen

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Originally Posted by mmbreb View Post
We went to the University of Michigan hospital where they did a MRI, Ultrasound, and Echo on the baby. Although the cardiologist and neurologist said they would classify her issues in the mid range giving hope that she could be okay. The OB coordinating care however let us know that she believes that there is nothing that they can do and that they baby will go into heart failure before we can reach full term. When I did not cry or get upset as she told us this she told me twice more "I want to make sure you understand that I am telling you your baby is not going to survive."

What she doesn't understand is I am not willing to accept that answer. We had U of M express mail all the test to NY. I truly believe that they will have a much better answer than "we are just going to wait for your daughter to die".

We may hear back from NY as early as tues but more likely wed or thurs given the holiday weekend and no monday mail delivery.
I can't believe they would tell you different things like that. How incredibly frustrating! Hugs & continued prayers mama.

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Old 05-29-2012, 05:34 PM   #32
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Wow I would think the specialists would know more then the ob! I can't believe they would tell you that??
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Old 06-03-2012, 09:16 AM   #33
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Re: Tentative diagnosis: Vein of Galen

I wrote the whole story out here http://www.diaperswappers.com/forum/....php?t=1402110 At the very end is the update on what is happening now. I just wanted to get it all out in one place...
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Old 06-20-2012, 03:31 AM   #34
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Re: Tentative diagnosis: Vein of Galen

http://www.diaperswappers.com/forum/....php?t=1402110 Just updated in the whole story thread.
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Old 06-24-2012, 10:07 AM   #35
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Re: Tentative diagnosis: Vein of Galen

Hugs!!!
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