Reply Hey Mom! Learn more about the Gerber Life Insurance Grow-Up Plan!
 
Thread Tools Display Modes
Old 05-29-2012, 11:56 AM   #1
croark's Avatar
croark
Registered Users
seller
 
Join Date: Feb 2010
Location: N LA
Posts: 888
Dealing with HSP autoimmune disorder?

Does anyone else have a child with this? My 10 yr old was just diagnosed with it a week ago. She has gone from a vibrant child to an old old lady because of the severe joint pain. It's really hard to find real life accounts of this since it's so rare. I thought I'd ask around here to see if anyone else has experience with it.

Advertisement

croark is offline   Reply With Quote
Old 05-29-2012, 12:18 PM   #2
ktmelody
No Longer Here
 
Join Date: Jan 2007
Posts: 20,304
My Mood:
No experience. Just wanted to offer my 6 year old has a rare disorder and it sucks sometimes....no one knows much about it.

Have you googled around for a support group?
ktmelody is offline   Reply With Quote
Old 05-29-2012, 02:43 PM   #3
croark's Avatar
croark
Registered Users
seller
 
Join Date: Feb 2010
Location: N LA
Posts: 888
Re: Dealing with HSP autoimmune disorder?

Quote:
Originally Posted by ktmelody View Post
Have you googled around for a support group?
I have. About all I can really find is generic info on the disease. I just keep running into brick walls!
croark is offline   Reply With Quote
Old 05-31-2012, 11:44 AM   #4
triton77
Registered Users
seller
 
Join Date: Jun 2010
Posts: 77
Re: Dealing with HSP autoimmune disorder?

Are you talking about Henoch-Schonlein purpura? My dd who is 16 now had it when she was 6 and has no ill effects from it now. It took awhile for it to go away but once it did it was gone.

Good Luck!
__________________
Janelle
Wife to K (99)
Mama to 6--- A(95), S (00), J(01), H(04), M & L (10)
triton77 is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Copyright 2005 - 2014 Escalate Media. All Rights Reserved.