Diaper Swappers

satiglenn · 08-01-2012, 06:27 PM

Isaiah will be 5 in September, and I'm taking him to the Dr tomorrow to see if we can get a referral. I'm not sure if this is really anything, or if I'm just being paranoid. He has a lot of trouble in social situations, like not ever answering anyone's questions. Ever. Even people that he's known all his life, like family. They'll ask him about school (we homeschool) or his friends, or even what he had for lunch, and he'll smile at the wall and make some noise, like "tck tck tck tck" or something crazy like that. He can talk just fine, though, and talks to the same people that he won't answer questions for. He's really smart and doing great in school, but he can't seem to "act right" around other people (for lack of a better expression. I never say that kind of thing to him.) He also has a thing about numbers/music. He know exactly how many minutes and seconds for every song on every cd in our house. He has a pretty big collection of calculators, and he counts by (enter number here)s for different songs. He got upset at his dad the other day because he (dad) wouldn't replay a song when Isaiah wanted to count by four's to it. Like, he literally had a melt down. He knows how many pages are in each one of our books on the bookcase just by naming the title. He also has serious anger issues, and is completely incapable of controlling his emotions.

Does this sounds like something, or is he just a "normal" little boy, and I'm a paranoid parent? Any insight, ideas, or experience is welcome.
_________________

Shaunam · 08-01-2012, 07:38 PM

You are not paranoid. :-) He sounds like has a lot of the qualities...he sounds very smart! My ds isn't diagnosed and I'm not sure we will go through with the evaluation. He's 7 and has his quirks and difficulties. I just feel if he is asd he may be too mild to really benefit from a diagnosis.

iris0110 · 08-01-2012, 11:12 PM

It does not sound like you are paranoid, there are definitely some red flags in your post. My oldest is on the line between Aspergers and PDD NOS. He has similar characteristics and behaviors. He can't carry on a normal conversation even though he happily "talks to people". He doesn't really answer questions he more talks at people. We just did another evaluation (we try to do a new one every few years) with a developmental psychologist. I recommend asking your pedi to refer you to either a developmental pedi, child psychologist, or possibly neuropsychologist. Kearnan has been through many evaluations and typically they follow a similar pattern (they can be a little different based on age). First the doctor will talk to you and your dh. You will tell him/her what your concerns are and then fill out some questionaires. After that the doctor will fill you in on how the testing will follow. For the most recent testing Kearnan did we brought him in two days in a row for about 4 hours. For him it was more intense than in the past because he is much older now so he is expected to do more. When he was younger evaluation was more like playing with stacking and lacing ect. The doctor will test his ability to focus, fine motor and gross motor abilities and also just watch him and interact with him to get a feel for how he behaves.

satiglenn · 08-02-2012, 11:10 AM

Thanks, y'all.
We went to the doc today to see if he thought there may be need to write a referral. He did

So no, I guess I'm not just paranoid. We should have the referral by next Monday, and will go from there. He said it could be six months before we could get in, tho. Sigh...

nebraskamom · 08-02-2012, 12:29 PM

Hugs!

Chasing Zen · 08-02-2012, 06:54 PM

Hugs to you Mama! My Aspie is now 16....he's made incredible strides since his diagnosis and though it's not always easy, it's definitely been worth the hard work. He has actual friends, he's on the Honor Roll with all Honors classes, he was on the football team last year and though they wanted him to play JV, he decided to spend more of his time being on the Robotics Team this year....and he's Happy! He's still quirky, he's still brilliant, he's just able to handle things better/ more appropriately

Good Luck and PM me if you ever need to talk.

satiglenn · 08-03-2012, 06:02 AM

Quote:

Originally Posted by Chasing Zen

Hugs to you Mama! My Aspie is now 16....he's made incredible strides since his diagnosis and though it's not always easy, it's definitely been worth the hard work. He has actual friends, he's on the Honor Roll with all Honors classes, he was on the football team last year and though they wanted him to play JV, he decided to spend more of his time being on the Robotics Team this year....and he's Happy! He's still quirky, he's still brilliant, he's just able to handle things better/ more appropriately

Good Luck and PM me if you ever need to talk.

This is exactly what i needed to hear right now. Thank you! I don't want to change him; he is absolutely amazing. I just eanna help him if i can. This is a scary road to travel right now. I may take you up on the pm offer

Chasing Zen · 08-03-2012, 10:05 AM

I'm/We're here for you Mama!

ChelseaGirl7 · 08-03-2012, 10:44 AM

Sounds like you are right to follow your mama instinct. My ds is 5 and goes to the dev. ped at the end of the month. He is the same way with answering questions, he either doesn't say anything or says "I don't know". He also makes random noises (we usually know what they are from, but others don't). i have been waiting 2 years to get a diagnosis, if it doesn't happen soon they better watch out cause I'm going to get seriously pushy! Lol.
I feel though that I have already accepted his "quirks" as part of who he is, I just want a baseline diagnosis so I can "know", and hopefully help him adapt better, kwim?

Chelsea mom of 4, from my phone

mom1mg · 08-03-2012, 12:18 PM

Hugs too mama. My guy is pdd-nos and 8 years old. He's been in therapy for only SIX MONTHS. In that time he's learned to play with toys (!!!!), has made friends (!!!) real friends with another boy on the spectrum with similar interests, has been to SN's summer camp without us, is learning to read, no longer has temper tantrums... the list goes on and on and on. Diganosis opened SO MANY doors for us. That day wasn't a sad day - we had a party to celebrate diagnosis because with it we finally knew how to help him! AND I can't stress this enough - our son plans his own therapy goals. He fully understands that he is special needs and things can be harder or different for him. We ALL accept him just the way he is. We never wanted him to think that there was something "wrong" with him or he was somehow damaged or not as capable as everyone else. That has really helped. Since diagnosis his self esteem is SO MUCH better. The reason we let him plan his own goals is that he feels like he is a part of his own thepary so therapy isn't something just happening to him AND so that he can choose which areas of himself he wants to work on without maknig him feel like he has to "change" the parts of himself he likes.

08-01-2012, 06:27 PM	#1
satiglenn Registered Users Join Date: Mar 2010 Posts: 134 Ratings: 6 Feedback: 100% My Mood:	Mom's of Asperger's: how can you tell? Isaiah will be 5 in September, and I'm taking him to the Dr tomorrow to see if we can get a referral. I'm not sure if this is really anything, or if I'm just being paranoid. He has a lot of trouble in social situations, like not ever answering anyone's questions. Ever. Even people that he's known all his life, like family. They'll ask him about school (we homeschool) or his friends, or even what he had for lunch, and he'll smile at the wall and make some noise, like "tck tck tck tck" or something crazy like that. He can talk just fine, though, and talks to the same people that he won't answer questions for. He's really smart and doing great in school, but he can't seem to "act right" around other people (for lack of a better expression. I never say that kind of thing to him.) He also has a thing about numbers/music. He know exactly how many minutes and seconds for every song on every cd in our house. He has a pretty big collection of calculators, and he counts by (enter number here)s for different songs. He got upset at his dad the other day because he (dad) wouldn't replay a song when Isaiah wanted to count by four's to it. Like, he literally had a melt down. He knows how many pages are in each one of our books on the bookcase just by naming the title. He also has serious anger issues, and is completely incapable of controlling his emotions. Does this sounds like something, or is he just a "normal" little boy, and I'm a paranoid parent? Any insight, ideas, or experience is welcome. _________________

08-01-2012, 07:38 PM	#2
Shaunam Registered Users Join Date: Mar 2008 Posts: 2,451 Ratings: 1 Feedback: 100%	You are not paranoid. :-) He sounds like has a lot of the qualities...he sounds very smart! My ds isn't diagnosed and I'm not sure we will go through with the evaluation. He's 7 and has his quirks and difficulties. I just feel if he is asd he may be too mild to really benefit from a diagnosis. __________________ Shauna, mom to Adrian, 8 and Charlie, 5!

08-01-2012, 11:12 PM	#3
iris0110 Registered Users Join Date: Apr 2006 Location: N TX Posts: 13,489 Ratings: 236 Feedback: 100% My Mood:	Re: Mom's of Asperger's: how can you tell? It does not sound like you are paranoid, there are definitely some red flags in your post. My oldest is on the line between Aspergers and PDD NOS. He has similar characteristics and behaviors. He can't carry on a normal conversation even though he happily "talks to people". He doesn't really answer questions he more talks at people. We just did another evaluation (we try to do a new one every few years) with a developmental psychologist. I recommend asking your pedi to refer you to either a developmental pedi, child psychologist, or possibly neuropsychologist. Kearnan has been through many evaluations and typically they follow a similar pattern (they can be a little different based on age). First the doctor will talk to you and your dh. You will tell him/her what your concerns are and then fill out some questionaires. After that the doctor will fill you in on how the testing will follow. For the most recent testing Kearnan did we brought him in two days in a row for about 4 hours. For him it was more intense than in the past because he is much older now so he is expected to do more. When he was younger evaluation was more like playing with stacking and lacing ect. The doctor will test his ability to focus, fine motor and gross motor abilities and also just watch him and interact with him to get a feel for how he behaves. __________________ ShannonInk'd, Atheist, Liberal, Part Time Large Equipment Mechanic, HS-ing, Mum to ASD Ninja Kearnan (8-4-01) & Derby Boy Tharen (12-1-05) Always remembering Arawyn Born Silently (12-21-03) Crocheted longies/shorties, toys and more see samples Arawyn's Garden Crochet

08-02-2012, 11:10 AM	#4
satiglenn Registered Users Join Date: Mar 2010 Posts: 134 Ratings: 6 Feedback: 100% My Mood:	Re: Mom's of Asperger's: how can you tell? Thanks, y'all. We went to the doc today to see if he thought there may be need to write a referral. He did So no, I guess I'm not just paranoid. We should have the referral by next Monday, and will go from there. He said it could be six months before we could get in, tho. Sigh...

08-02-2012, 12:29 PM	#5
nebraskamom Registered Users Join Date: Jun 2010 Posts: 575 Ratings: 15 Feedback: 100% My Mood:	Re: Mom's of Asperger's: how can you tell? Hugs! __________________ Christian family. Psalm 63:3-4 "Because your love is better than life, my lips will glorify you. I will praise you as long as I live, and in your name I will lift up my hands."