Agenesis of the corpus collosum?

[QMtwins]

One of our in utero twins was just diagnosed with this. Anyone know anyone or anyone's child who does not have a corpus callosum (its a structure in the brain that acts like the superhighway between the two halves).
Thanks.

[mamasab]

I have a friend through my playgroup that has a daughter with this. The little girl is an absolute doll, we love her so much! I've known them for about 2.5 years and she has made so much progress. The family recently went to a conference all about ACC and the mom shared this website on the playgroup site so we could learn a little about it if we wanted to, but it is a very comprehensive site for parents, it has a million links to support groups/websites/blogs! It's a lot, but maybe you will find it helpful:
http://scenicbeauty.tripod.com/Angel...dTheWorld.html

[jveprek]

Madi's is underdeveloped, which is pretty common for kiddos with spina bifida, but you would never know! They say other areas of the brain can make up for it, and I believe it. We also have a friend who has a little girl who is completely missing it. They signed her up for early intervention, but she exited out really quickly, because she had no issues.