Any others here on DS with Noonan Syndrome?

[court3189]

With a prevalence up there with Down Syndrome, I've got to believe we're not the only one's here

[l_Kimmie_l]

My BFF's son has it. It was a random mutation. I told her to join here as she knows no one else with a child with it. Her son goes to my son's school and is in his class. My boy has PDD-NOS.

[court3189]

Thanks! If she wants to message or email me let me know! If she isn't aware of it-let her know there is a pretty active facebook group, the one titled 'Noonan Syndrome Family'. How old are both your boys?

[l_Kimmie_l]

Originally Posted by court3189 Thanks! If she wants to message or email me let me know! If she isn't aware of it-let her know there is a pretty active facebook group, the one titled 'Noonan Syndrome Family'. How old are both your boys?

I will, she does have facebook. I will have to tell her about the group. She feels so lonely at times. My boys are 15, 4, 3, and 5 months. Our 4 year olds are in the same class. My 3 year old is also close to her son. He is 4 too.

[devon]

I'm on here occasionally but you already know me via FB