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Old 10-03-2012, 02:26 PM   #1
slyfoxy
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Question Feeling Lonely

I'm going to be going in to see my RE oct 11 to talk about my surgeries coming up and for right now my dates for surgeries is set for Oct 23. The surgeries are going to be for endometriosis too see if it has came back because I've been having lots of issues with my cycle almost every month. I'm praying it's not bad at all but I've been having lots of pain at times so I'm scared it came back worst this time around. A few years I had it removed an it was very mild but this time I'm afraid it's worst.

Here is what be having done if not pregnant this time. Having done is HSG,D&C,Diagnostic hysteroscopy& laparoscopic ablation of endometriosis.


I'm starting to feel lonely in this time. I'm excited to get the surgeries soon if not pregnant this time but again getting very nervous an scared because will be having more done this time around. I do not want be told it's over on getting pregnant.

Do any of you ever feel lonely when your fixing to have something done? I have a wonderful DH but I just feel so lonely at times about this. I don't want the endometriosis to be worst where can't get pregnant again. I'm so scared of this.

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Old 10-03-2012, 03:27 PM   #2
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I've never had to deal with endo so I have no idea what your going through. I hope you get your BFP so you don't need surgery!
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Old 10-03-2012, 03:36 PM   #3
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Re: Feeling Lonely

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Originally Posted by TinaDeanette View Post
I've never had to deal with endo so I have no idea what your going through. I hope you get your BFP so you don't need surgery!
Be thankful you never had too. Endo is a pain to deal with an when it affects you not been able get pregnant, it makes a lady feel a lot worse. I sometimes feel like a failer because of having this stupid stuff. I hate it an hate it keeps coming back. No Cure for it wished was.
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Old 10-03-2012, 03:42 PM   #4
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Quote:
Originally Posted by slyfoxy

Be thankful you never had too. Endo is a pain to deal with an when it affects you not been able get pregnant, it makes a lady feel a lot worse. I sometimes feel like a failer because of having this stupid stuff. I hate it an hate it keeps coming back. No Cure for it wished was.
Yes, after the 16 week loss of my baby I felt like my body failed too
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Old 10-03-2012, 03:54 PM   #5
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Re: Feeling Lonely

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Originally Posted by TinaDeanette View Post
Yes, after the 16 week loss of my baby I felt like my body failed too
I'm so sorry you had to go through that. I hate when feeling as a failer but here after trying soon be a year an nothing for me not even a sign of a BFP always a BFN. Gosh I hate it so much.
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Old 10-03-2012, 08:58 PM   #6
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Re: Feeling Lonely

Why are they doing a d&c? I've never herd of that and I have had my endo at a stage 4 three of the four times they have been in there. I also have adenomyosis and PCOS. I have spent the last 14 months heavily treating my endo with surgery and lupron for the last 6 moths so I can kind of relate on how frustrating it can be. I will have a US in two weeks to see how things look on the big screen with hopes to skip surgery and get the show on the road so to speak. It has been a long process and I am very frustrated by it all, especially since we have no real answers as to it working or not. Things have looked better on the last US but the first US a year ago showed very little endo at all before the surgery, but it was wide spread when they got in there. Know that you are not alone. Many of us have been there and we all are here to offer comfort or just listen to you B!tch as needed. This sucks and it is a very frustrating thing to deal with. My DH is a wonderful husband, but he has not been the best at being supportive about this whole process. The lupron sucks, but I will say it has helped the adenomyosis go down considerably and the endo on the ovary is gone as well so it may be worth looking into. Good luck with your surgery. Feel free to PM me if you want to talk.
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Old 10-05-2012, 11:25 PM   #7
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Re: Feeling Lonely

I do not know why excalty why a d&c but I've been have lots of bleeding an when have my cycle it has been getting heavier on bleeding with huge clots so the last time I talk to my doctor an seen in my notes that I bled really heavy the other cycle with huge clots he said he wants to do a d&c I didn't ask no questions as with all been happening with my cycles I want the pain to stop.So can get moving on with TTC once again. Sometimes I have lots of pain before my cycle starts an when does it really bad for a few days then finally gets better. So he's going to do everything while in there an clean me all the way out I guess. I hope he don't find nothing really bad as I want to get my 3rd baby an hopefully have my family completed.

Soon be a year of TTC an no baby yet not even a sign of a BFP.


I can't wait to get my surgeries over an start TTC once again.

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Old 10-06-2012, 08:46 AM   #8
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Re: Feeling Lonely

, mama. I'm so sorry that you're having a hard time. You're right that there is no cure for endo yet, but a specialist in St Louis has done a study with teenagers where he did excision instead of ablation (cutting with a laser rather than burning with a laser) and he found no recurrence. It's a small study, and more research is needed but there's hope.
I listened to him speak at a conference and it was fascinating. What I learned is that it is really important to have a specialist in endometriosis do the surgery. Unfortunately, the extent of the endometriosis does not correspond to the fertility effects or pain. Some women have just a little endo but still have lots of pain and infertility but others have lots of endo but no effects on fertility. So it's really important to have a specialist who will surgically remove all of the endo - if they remove most but not all of it, then you may still have fertility issues. And a surgeon who specializes in endo is more likely to find the hidden spots. By cutting (instead of burning) the endo, they are able to make sure they go deep enough to get all of the endo and not just the surface stuff.
Unfortunately, lupron is widely used instead of surgery. It is useful for treating the pain of endo but there is always endo when the treatment stops. There are no studies which show any improvement in fertility with lupron.
Here's the website for the specialist who did that study:
http://obgyn.slu.edu/index.php?page=...-endometriosis

again. I can only imagine what you're going through. I hope you find peace, health, and a baby in your arms soon!
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Old 10-08-2012, 09:07 AM   #9
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Re: Feeling Lonely

I wished we had a specialist around here close to help with Endometriosis but there isn't. I done told my DH later down the road I need find someone that is a specialist in this stuff. I wished didn't have to go through surgery again but can't be helped. I'm praying they don't find it to bad, as if do not sure how to handle the news. Get to speak to my RE here Thursday about my surgeries an praying he will move the dates up instead of having to wait til Oct 23. I want it OVER ASAP..

I sure wished there was a cure for this stuff oh no not. So have to fight tooth an nail to get pregnant again. Here I don't have much longer to get pregnant thanks to my age.
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Old 10-08-2012, 11:55 AM   #10
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Re: Feeling Lonely

so sorry. TTC can be so heart breaking and lonely. Especially when no one is your real life understands. I feel so blessed to have such amazing friends and family but they still don't really understand how hurtful every month without a healthy pregnancy is. I had stage four endo removed in Jan and did three months of the depo lupron.... have you discussed that at all??? We managed to conceive immediately but sadly lost our baby at 11 weeks related to other health issues. The waiting is the hardest. One more month.... one more surgery.... one more med.... one more shot.... all I want is one BFP and one healthy pregnancy. TTC is such a cycle in itself. THe ups and downs of hormones and hope and then feeling let down. So tricky and like you said so lonely at times.

Hope your RE can move up your surgery. My heart goes out to you during this time of aloneness. Hope you feel comforted and peace even in the waiting and un-knowing.
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