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Old 02-04-2013, 03:53 PM   #21
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Re: Poor sick baby...C. Diff, please help!

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If everything else fails, stool transplant from a healthy, screened donor (maybe you!) with normal stools cures 90-some percent of C. Diff cases within hours!
This is done as a last resort but is very effective!

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Only advice is to wash your hands, and babies hands. Cdiff spores remain on hands and must be scrubbed and rinsed off. Not sure if lysol kills cdiff but if not I think walgreens may sell cavi wipes which do, follow manufacture instructions (surface must stay wet for certain amount of time).

Nurse nurse nurse baby to stay hydrated and be sure to give probiotics at the opposite time antibiotics are taken.

Good probiotics are refridgerated and ive heard anything else is just impotent. Get to a healthfood store they should have a section for them refridgerated, there will be kids liquid is best
Lysol will not kill c.diff, only bleach and good hand washing- actual handwashing, not the alcohol based sanitizer.

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If it makes you feel better my son has been on tons of antibiotics throughout his life and never got C-diff from antibiotic use. Ds has even been on a 10 day course of high powered IV antibiotics to destroy antibiotic resistant bacterial spinal infection followed up with another 10 day course of high powered oral antibiotics. One outpatient surgery and his rectal stump (he has a colostomy) was colonized with C-diff. The rest of his GI tract (the working part) was completely clear through. I don't know how we avoided it spreading from the rectal stump to the working part of his GI tract but we did.

I really really doubt the c-diff was from a 10 day course of a low level antibiotic typical used to treat ear infections. Something just doesn't seem right with that I would be thinking back to everything she was exposed to around that time. When our GI got the positive test results back the first thing he said was "huh, your son has been in the hospital recently hasn't he?" Yup, outpatient surgery with an extended stay in the recovery room.
With some people all it takes is a course of antibiotics. (I have never had it but being an RN in a hospital setting I see it all the time. Ironically, my sister got c.diff from an oral antibiotic for a sinus infection).

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I will follow up with the doctor, but she did test positive. Not really sure where else she could have gotten it.

Overall happy with Doctors responsiveness. Went in on Friday afternoon, turned in sample Saturday morning and he called with diagnosis on Sunday and we checking in today. He called and said he is consulting with a GI specialist.

Been doing research, sounds like we need to pick up some Florastor , it has the specific strain of pro- biotics to counter C diff.

Good news is her other sypmtoms seem to be going away.

Thanks all for your support and kind words.
Glad things are looking up!!

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Old 02-04-2013, 07:16 PM   #22
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Poor baby.

Florastor is expensive but awesome. After trying some worthless probiotics, it's the only one I use when we need antibiotics. I had to triple the dose for DD though. She takes it on ice cream with sprinkles or mixed with Nutella on crackers (also with sprinkles).
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Old 02-04-2013, 08:55 PM   #23
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Re: Poor sick baby...C. Diff, please help!

oooooh...hadn't thought about with Nutella.... DS is going to love you.
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Old 02-05-2013, 02:05 AM   #24
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Actually my sister had this a few months back...it took her a long while to get over it and she's almost 40. But it took awhile for her to go to the Dr and then awhile for them to diagnose it. But she said above all go as often to the Dr as you feel necessary its quite serious and they can do wonders...if your little one has to go to the hospital don't think of it as bad as she'll be with Dr and nurses 24/7 for even the smallest things she needs just in case. My sister said take her with the fever bc it could be getting worse...
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Old 02-11-2013, 02:52 PM   #25
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Re: Poor sick baby...C. Diff, please help!

Ugh, I was hospitalized with C-Diff in May of 2009. It was terrible and i wouldn't wish it on my worst enemy! The wrenching stomach pain was terrible. I was on IV vancomycin for four days and a follow up round of Flagyl at home.

Once you have it, the doctors told me that you are more susceptible to getting it again. i was so afraid to handle patients with it for fear of getting it again.

Almost 4 years later, I still have abnormal stools. The Doctors think it did permanent damage to my colon. I am reluctant to get the needed colonoscopy to see what is really going on.

Poor baby, I can't imagine. I really hope that she is feeling better.
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Old 02-11-2013, 07:56 PM   #26
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Re: Poor sick baby...C. Diff, please help!

I did not read all of the responses but my son has a digestive disease that required surgery as a newborn. He was 11 months the first time he had c-diff and it recurred nearly every 6 months until he was 4 when we finally solved it. We had tried less intense methods of treatment but each test showed bad bacteria at pathogen levels and minimal good bacteria. Feel free to PM me...I can give you a lot of info on what tests we used. Eventually he went on a very strict yeast elimination diet that was sugar, dairy, and grain free for 3 months without cheating. During that time he was on Diflucan for 2 months followed by GSE for another month. He took 100 billion cfu's of probiotics on top of prebiotics, juice plus, neuro-methylation cream, Intra Kid liquid multi vitamin, juice plus, and digestive enzymes. I say all of this to stress how important it is to get the right care now and really try to avoid antibiotics in the future. My son has not been on antibiotics since he was 6 months old but continued to get c-diff because we never really resolved it even though the symptoms would go away for a while. We didn't have the right doctors until he was 15 months old and then our doctor admitted to not fully understanding that the best way to treat it was for 3 intense months. Previously we had done 2 week treatments. We still follow a strict sugar, milk, and gluten free diet but we do allow some whole grains, yogurt, and cheese now.

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Old 02-11-2013, 08:01 PM   #27
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Re: Poor sick baby...C. Diff, please help!

I wanted to mention that his most recent labs showed normal colonization of good bacteria and his bad bacteria was in the normal range for the first time since birth. Also, we use Klaire Labs Pro Thera Complete probiotics and Biotagen prebiotic at our doctor's recommendation. Now that he is "normal" he takes 25 billion CFU's of the Klaire Labs product and an adult Culturelle per day. He was specifically deficient in lactobacillus and Culturelle is the only one that is straight lactobacillus.
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Old 02-11-2013, 09:15 PM   #28
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Wow, thank you all for your responses. The more I find out about this disease, the more worried I get.

She started feeling much better after 5 days of probiotics and 2 days of antibiotics. Her flu and cold and cough cleared up at that time.

Her poo has been getting much better...reduced in frequency, no more mucous and almost a solid consistency today.

Went back in today for a check up. Unfortunately her ear is still inflamed (pink, not bulging). So next stop is ENT specialist to talk about tubes in her ears.

Doctor prescribed 3 extra days of metronidazole just to be safe. Sounds like I need to get testing done to make sure we are all clear. 7mom7, sending you a PM!!

Is testing the only way to know we are all clear??
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Old 02-11-2013, 09:32 PM   #29
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Re: Poor sick baby...C. Diff, please help!

Yup, the only way to know you are clear is testing.
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Old 02-11-2013, 10:04 PM   #30
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Re: Poor sick baby...C. Diff, please help!

I'd seek out chiropractic treatment for her ear infections. Chronic ear infections can be traced back to food allergies/sensitivities. We've successfully healed ear infections and bronchitis without the use of antibiotics. It helps that our pedi is on board with natural treatments and I realize that most aren't. We typically use colloidal silver, grapefruit seed extract (GSE), garlic, and 100% therapeutic grade essential oils. I'd cut out soy, corn, gluten, white rice, russet potatoes, dairy, and sugar until you are positive that she's in the clear. Maybe up her vitamin D and do some immune boosters? We were so far from holistic when we started this journey but trust your instincts, doctors are well meaning but no single doctor has all the answers. Maybe you can try eliminating some foods before resorting to tubes? Consider environmental allergies like mold as well. Both of my kids are highly allergic to mold. Certain foods that I wouldn't have suspected were high in mold. I don't mean to overwhelm you with info, just start slow and do your own research. I knew we had found the right doctor when what she was saying lined up with my own research and gut feelings of what was wrong with our DS.
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