Reply Hey Mom! Learn more about the Gerber Life Insurance Grow-Up Plan!
 
Thread Tools Display Modes
Old 02-07-2013, 11:41 AM   #21
Kiliki's Avatar
Kiliki
Registered Users
Formerly: kr***y
seller
 
Join Date: Jun 2007
Posts: 9,397
Re: anyone decline the PKU?

just checked my state's website. It *can* be declined.

still rdg....

Advertisement

Kiliki is offline   Reply With Quote
Old 02-07-2013, 11:45 AM   #22
misskira
Banned - User Requested
seller
seller
 
Join Date: Mar 2008
Location: Western Oregon
Posts: 7,162
My Mood:
Re: anyone decline the PKU?

Quote:
Originally Posted by Nerissa View Post
I work in the schools and have seen the results to a kid that didn't get tested and/or parents didn't follow the rules so to speak and it is sad.

I would do the test
yes yes yes.
I'm a special education teacher. I declined the eye goop, I declined a hospital bath. I understand declining the vitamin k shot. The heel prick was really uncomfortable for my first baby, and my second nursed right through it. But after seeing the results of a metabolic disorder, I personally wouldn't ever decline the pku. My student had mental retardation from the food she ate before they knew what was wrong. She then lived with a very limited diet for years. Eventually she had a liver transplant and can now eat normally, however the cognitive delay is for life.
misskira is offline   Reply With Quote
Old 02-07-2013, 11:51 AM   #23
Kiliki's Avatar
Kiliki
Registered Users
Formerly: kr***y
seller
 
Join Date: Jun 2007
Posts: 9,397
Re: anyone decline the PKU?

I am thinking we will do it but I want to see if we can delay it this time to avoid having to do it twice.

My DD1 cried, but we were in a hospital and the whole experience was miserable for us both, so I don't remember it vividly. My DS nursed right through the heel stick and never even opened his eyes. My DD2 was ballistic and hysterical both times. I hid in the bathroom and cried while they stuck her the second time, I was so upset over it.

I just want to avoid doing it twice. It was awful.

But I do see the value of it. Apparently the things it tests for are things that most people have no known family history of, and are things that can kill or seriously mame a child forever if left untreated.

YIKES!
Kiliki is offline   Reply With Quote
Old 02-07-2013, 01:01 PM   #24
oregonmom's Avatar
oregonmom
Registered Users
sitesupporter
seller
seller
 
Join Date: Sep 2007
Location: Boise, Idaho
Posts: 1,523
My Mood:
Re: anyone decline the PKU?

We were told the second one tests for more things then the first one, so we do the second one after a few days, but not the first one.
__________________
Alisha: SAHM and teacher to 3 great boys 03/2002, 11/2005, 11/2007, and one great girl -03/2013 2 Angel babies 7/2010,10/5/2011-
Come join the swag fun- www.swagbucks.com/refer/monekeysmom
oregonmom is offline   Reply With Quote
Old 02-07-2013, 01:11 PM   #25
ingrid5699
Registered Users
 
Join Date: Aug 2006
Location: Vienna, Austria
Posts: 319
Re: anyone decline the PKU?

I'm sorry but I do NOT get the reasoning for declining this test.

All of the diseases it tests for are fatal or at least cause major disabilities if not caught early. And all are treatable if caught. And all CAN show up as a spontaneous mutation and not only be passed on so the fact that you already have healthy kids doesn't make you 'safe'.

My BIL was one of the first babies saved by this test 39 years ago. He has phenylketonuria which is what gave the test the name. With a special diet he was able to lead a totally normal life-graduated high school, got a master's. Without that test he would have had little brain function left even by the time he started preschool.

But I guess it's your child so do whatever you are comfortable with. Me-I would NOT want to skip this test.
__________________
Ingrid, Mommy to Patrick 12'06 and Aurelia 12'08, Mommy to 6 angel babies-triplets 11'04, baby B 5'06 and our last little angel 2'12, chemical pregnancy 6'12, hoping our rainbow baby will join us in May 2013
ingrid5699 is offline   Reply With Quote
Old 02-07-2013, 01:14 PM   #26
ingrid5699
Registered Users
 
Join Date: Aug 2006
Location: Vienna, Austria
Posts: 319
Re: anyone decline the PKU?

Okay-reading better I get why you declined. You are right that the test is NOT accurate enough before baby has had some milk so generally 48-72h. Doing it right after the birth is not recommended and I think on that grounds I would decline too. Any ped should be able to do the test so I would just have him do it in that window.
__________________
Ingrid, Mommy to Patrick 12'06 and Aurelia 12'08, Mommy to 6 angel babies-triplets 11'04, baby B 5'06 and our last little angel 2'12, chemical pregnancy 6'12, hoping our rainbow baby will join us in May 2013
ingrid5699 is offline   Reply With Quote
Old 02-07-2013, 01:24 PM   #27
PoshPants
Registered
seller
 
Join Date: Dec 2006
Posts: 3,492
My Mood:
Re: anyone decline the PKU?

they should be testing more than just PKU, I'd never ever decline such a test! If your baby has one of the many conditions they test for, the chance of survival is much better when you know about it ASAP.
__________________
IHA: books, fabric, lots of new baby clothes, toys
ISO: Amazon codes, Paypal or Gift Cards
PoshPants is offline   Reply With Quote
Old 02-07-2013, 01:26 PM   #28
PoshPants
Registered
seller
 
Join Date: Dec 2006
Posts: 3,492
My Mood:
Re: anyone decline the PKU?

Quote:
Originally Posted by misskira View Post
yes yes yes.
I'm a special education teacher. I declined the eye goop, I declined a hospital bath. I understand declining the vitamin k shot. The heel prick was really uncomfortable for my first baby, and my second nursed right through it. But after seeing the results of a metabolic disorder, I personally wouldn't ever decline the pku. My student had mental retardation from the food she ate before they knew what was wrong. She then lived with a very limited diet for years. Eventually she had a liver transplant and can now eat normally, however the cognitive delay is for life.
We don't do the bath or the eye stuff in Europe (or vaxs at birth) but we sure do the metabolic testing!
__________________
IHA: books, fabric, lots of new baby clothes, toys
ISO: Amazon codes, Paypal or Gift Cards
PoshPants is offline   Reply With Quote
Old 02-07-2013, 02:41 PM   #29
zandj's Avatar
zandj
Registered Users
seller
seller
 
Join Date: Aug 2007
Location: Texas
Posts: 6,818
Re: anyone decline the PKU?

we had a homebirth and went in after my milk was in for a day or so to our GP who gave us a slip to get it done at the hospital. No big deal and better than there being something wrong! only had to be done the once (thankfully b/c she SCREAMED! ugh)
__________________
Mama to P 12.07 and baby Q born at home 9.30.12 <3
zandj is offline   Reply With Quote
Old 02-07-2013, 02:45 PM   #30
Kiliki's Avatar
Kiliki
Registered Users
Formerly: kr***y
seller
 
Join Date: Jun 2007
Posts: 9,397
Re: anyone decline the PKU?

Quote:
Originally Posted by ingrid5699 View Post
Okay-reading better I get why you declined. You are right that the test is NOT accurate enough before baby has had some milk so generally 48-72h. Doing it right after the birth is not recommended and I think on that grounds I would decline too. Any ped should be able to do the test so I would just have him do it in that window.
I didn't decline it with any of my kids.

I was just wondering if anyone HAD declined it, and could offer some insight on their choice. My MW has clients that DO decline it. And I was wondering WHY someone would choose to decline it. That's all.

Like you, I see it as a valuable test.

We only do one heel stick here, there are not two. Yes, it tests for more than just PKU. It tests for a lot of metabolic disorders. You *can* decline it. I personally never have.

But I will be seeing this time if there is a way to postpone the test to a few days after the birth. It seems totally useless to do it when the results won't be useful (ie., quickly after the birth like was done before).
Kiliki is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Copyright 2005 - 2014 Escalate Media. All Rights Reserved.