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Old 02-15-2013, 07:36 PM   #11
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That's terrible Hope guys get some answers soon.

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Old 02-15-2013, 07:41 PM   #12
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Re: Insurance companies are evil

I hope it works out for you. Maybe get a petition from all of ds to be sent to them. Haven't a clue if it will help or if it is allowed. If it is allowed it may be worth a try.
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Old 02-15-2013, 07:41 PM   #13
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Re: Insurance companies are evil

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Originally Posted by MamaNae View Post
TRYING is stupid and reckless and incredibly dangerous. Trying the generic, since it's a different formula, has a very, very high chance of sending him into rejection...which would kill him. I'd rather not 'try' something that has a 60% chance of killing my husband...

He called the benefit specialist, she says they didn't change anything, the change is with BCBS.
Jeez. Was just trying to help. You make no mention at all of the generic "killing" your husband.
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Old 02-15-2013, 07:46 PM   #14
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Re: Insurance companies are evil

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Jeez. Was just trying to help. You make no mention at all of the generic "killing" your husband.
I am sure right now she is very stressed and scared. Facing the very real possibility of losing your husband is scary at any time. To face this while pregnant with 3 other small children is even scarier.
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Old 02-15-2013, 07:46 PM   #15
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I have a deep seeded hatred of insurance companies. I feel your pain, not to the same extent, but I understand where you're coming from.
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Old 02-15-2013, 07:47 PM   #16
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Re: Insurance companies are evil

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I am sure right now she is very stressed and scared. Facing the very real possibility of losing your husband is scary at any time. To face this while pregnant with 3 other small children is even scarier.
I'm sure she is. I was still just trying to help, no need to jump down my throat.
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Old 02-15-2013, 07:59 PM   #17
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Re: Insurance companies are evil

If generic was a viable option then the transplant surgeon and center wouldn't be jumping through hoops to avoid it.

The 3x a week blood draws, 2x a month blood draws followed by monthly blood draws for LIFE are because with a generic the level of drug is so imperfect that it could send him into rejection. They would have to keep a very very close eye on his levels for the rest of his life because odds are the generic will not be right and will send him into rejection. His hospital will not even prescribe them because they are so faulty.

Not to mention that Prograf is a 'risky' drug for kidney transplant patients to begin with because if the prograf level gets above a certain amount in the blood it will start to damage the kidney. My cousin had a double lung transplant just over 5 years ago, he was on ultra-high doses of prograf and it killed his kidney, he was on dialysis for around 2 years before he had another transplant in October of last year So if that level is imperfect in the generic (which it would be) then it could build up in his system and damage the kidney...(it is risky, but it's the only option right now...it's one of the best anti-rejection meds on the market right now)

We're walking a VERY fine line with Prograf as it is...and now we may lose it completely...

It sucks beyond belief.

I'm terrified that the stupid insurance company is going to MAKE us try and make us gamble with his life and his health...they don't care. All they care about is $$$$$$...they don't care that they're taking a father away from his children...
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Old 02-15-2013, 08:13 PM   #18
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Re: Insurance companies are evil

I"m so sorry. It's such a stupid system. If the doctor prescribes a drug for it;s FDA approved use, it should be covered. There should be no exceptions.
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Old 02-15-2013, 08:15 PM   #19
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So wrong on so many levels. This stupid crap is what's wrong w our healthcare. Why on earth should n insurance co have the authority to say what medications you take. Infuriates me!
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Old 02-15-2013, 08:16 PM   #20
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Re: Insurance companies are evil

Keep having the doctors call and bug them.

My moms insurance put up a fight for covering some of her cancer treatments that she had to have (she had a very very rare form of muscle cancer) they denied it over and over again. Even with her dr. from Mayo calling and saying she had to have this treatment. The day before she couldn't wait any longer they said okay.
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